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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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For Some Sufferers, Covid-19 Doesn't Come With An End-By Date – It Just Goes On And On
Saturday 11 July 2020
From US magazine the New Statesman:
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For some sufferers, Covid-19 doesn’t come with an end-by date – it just goes on and on
For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
Xanthe and her husband, Paulo, became unwell towards the end of March. Xanthe described classic Covid-19 symptoms: a horrible pressure on her chest, accompanied by a cough, burning pains and shortness of breath, all associated with diarrhoea and fatigue. Paulo’s picture, by contrast, was dominated by nausea, headache and debilitating muscle pain. Even though their presentations were so different, I confidently diagnosed them both with Covid-19. Two people in the same household, simultaneously unwell at the height of the first wave, one of them with typical symptoms: what else could be going on? I told them to expect recovery within a few weeks.
That was more than 14 weeks ago. Time and again, Xanthe has reconsulted with persisting symptoms. We have had her into our isolation room for an ECG and blood tests, and twice I’ve referred her for review at our local Covid-19 hot hub. At no point has she been bad enough to require hospital care. But she continues to be unwell.
The peculiar thing is the pattern. She will get two or three days with no symptoms but then the exact same cluster recurs. And Paulo is experiencing the same: recurrences of his own symptom pattern, not always coincident with Xanthe’s but, like her, punctuated by periods of a few days where he feels quite well.
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