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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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US Congressman Jamie Raskin Introduces Legislation To Address ME/CFS
Saturday 6 June 2020
From United States Congressman Jamie Raskin:
 Congressman Jamie Raskin |
RASKIN INTRODUCES LEGISLATION TO ADDRESS AMERICA’S HIDDEN HEALTH CRISIS
CDC labels chronic fatigue syndrome “America’s hidden health crisis” as 90 percent of patients remain undiagnosed
(WASHINGTON, D.C.) – Congressman Jamie Raskin (MD-08) today introduced legislation that would expand and coordinate National Institutes of Health (NIH) funding to address post-viral chronic neuroimmune diseases, including chronic fatigue syndrome (ME/CFS) in the wake of the COVID-19 pandemic. As Congress continues its response to the coronavirus, the Understanding COVID–19 Subsets and ME/CFS Act, H.R. 7057, will address the predicted rise in ME/CFS diagnoses linked to increasing COVID-19 cases across the country.
When a severe infection like the coronavirus sweeps through the population, ME/CFS often follows. This legislation would allow the NIH to support research and data collection on diseases like ME/CFS in order to understand how best to diagnose and treat those who are infected, as well as to assess possible risk factors. It would additionally provide for public awareness and education campaigns to increase our understanding of the disease, with an emphasis on early diagnosis.
“While we are facing a monumentally dangerous public health crisis, we must take all necessary steps not only to stem the spread of COVID-19, but also to prevent and control its lasting repercussions.” said Rep. Raskin. “We cannot let the number of ME/CFS cases rise due to a lack of research and understanding. As we battle the coronavirus, this critical legislation will help us respond to this ME/CFS hidden health crisis.”
Rep. Raskin’s legislation is endorsed by the Solve ME/CFS Initiative.
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