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UK ME Group Warning To COVID-19 Patients
Friday 15 May 2020
From UK newspaper the Sheffield Telegraph:
Sheffield ME group warning to COVID-19 patients
People in Sheffield living with myalgic encephalomyelitis – known as ME - have joined others nationally to protest amid fears a treatment they say is harmful will be offered to patients recovering from Covid-19.
They are horrified that graded exercise therapy, the same treatment that has left them housebound for years, could be offered to patients post-COVID unless action is taken now.
A six-metre-long card designed by 26-year-old Sian Leary from Sheffield, who herself has been mostly housebound with ME for more than seven years, contained 1,200 messages from 2,006 people.
They describe how graded exercise had made them worse and ask the National Institute for Health and Care Excellence (NICE) to take action now to stop graded exercise therapy being offered to more people experiencing post-viral ME.
Sian said: “At my worst I didn’t step outside into fresh air for 21 months, nor was I able to see anyone beyond closest family - it is strange for the world to suddenly be getting a tiny dose of the lockdown I have been through.”
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