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ME/CFS Australia Ltd
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Registered Charity 3104


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PO Box 322,
Modbury North,
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1300 128 339

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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Disability-Led Opera Company Raises Their Voice For At-Risk Chronic Illness Community During COVID-19

Monday 11 May 2020


From Broadway World:


Brittany Collins with her mom

Disability-Led Opera Company Raises Their Voice For At-Risk Chronic Illness Community During COVID-19

By BWW News Desk
May 8, 2020
© 2020 Wisdom Digital Media.

Canada's only disability-led, disability-run opera company is raising their voice in a new way for an at-risk community. Throughout the month of May, Vancouver's Opera Mariposa is running their first-ever online Benefit + Awareness campaign, a charity fundraiser in support of the ME|FM Society of BC. The digital event honours the International Awareness Month for chronic neuroimmune diseases, specifically ME (myalgic encephalomyelitis) and FM (fibromyalgia). In the midst of a pandemic, it also advocates for a community that is uniquely at risk.

Opera Mariposa has held a Benefit + Awareness Show for ME & FM every year since the company's inception, and was working on their eighth annual charity concert when COVID-19 halted the show. "One day, we were in the middle of planning rehearsals," says Mariposa general manager Stephanie Ko, who has suffered from ME since age eight. "Then COVID-19 happened, and it rapidly became clear there was no way for us to responsibly proceed with the production."

In such challenging times, though, the Mariposa team wanted to support the chronically ill community more than ever. "People with ME and FM are incredibly vulnerable right now," says Ko. "Statistics Canada shows that these patients already have the highest poverty levels and greatest unmet healthcare needs of any patient group in Canada. What's worse, is illnesses like ME are known to have a post-viral onset. There have been documented cases triggered by other coronaviruses, and based on previous studies, some researchers are warning that up to 10% of recovering COVID-19 patients could go on to develop ME."


Full article…



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