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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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I Was Sleeping Up To 18 To 20 Hours A Day... Says Irish Woman With M.E.
Saturday 9 May 2020
From Irish newspaper The Echo:
 Ashling O’Leary who has shared her experience of living with M.E. |
I was sleeping up to 18 to 20 hours a day... says Cork woman with M.E.
Ahead of International M.E. Awareness Day on May 12, Ballincollig-based Ashling O’Leary, aged 41, shares her personal story of Myalgic Encephalomyelitis (M.E.)
MY story, in its own way, started when I was a teenager, not long after my 16th birthday, in the winter of 1994-1995.
I had suspected undiagnosed glandular fever and didn’t recover. I spent the next 18 months picking up every virus passing through, and sleeping my life away, with very little energy.
Lucky for me, my parents had heard of Myalgic Encephalomyelitis (M.E.) and knew rest was the only required treatment available, as my then GP told my parents that all I was looking for was some extra love and attention, and at another stage was just attention-seeking — all while sleeping between 18-20 hours a day.
At this stage, I had not been at school very much since February — in for two to three days, then out for two weeks, etc.
One of my sisters always tells me her early teen memories of me were of me always falling asleep, and never having a normal social life. To me, it was just too much energy to think about, it was only in my 20s I realised how much I missed out, and how little of a life I had.
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