ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Thirty-Five-Year-Old Living In Aged Care Reveals What Life Is Like Inside During This Pandemic
Saturday 9 May 2020
From Australian broadcaster SBS:
Thirty-five-year-old living in aged care reveals what life is like inside during this pandemic
Ketra has been forced to live in an aged care facility due to her severe chronic fatigue syndrome. Unable to find suitable accommodation elsewhere, Ketra has had no choice but to stay, and now she's trapped inside as the coronavirus pandemic continues.
The severe lock down of the aged care facility where I live was early and brutal. The door codes were all changed, and I couldn't get out of the facility and no visitors could come in. This was in early March, I had just had my 35th birthday.
I don’t want to be here, I want to leave.
Unfortunately I haven’t been able to leave aged care because I have myalgic encephalomyelitis (ME) also known as chronic fatigue syndrome (CFS). I was hit hard with this disease and, within a year of getting it I’d deteriorated so much that I needed 24/7 care. After a three-month stint in hospital, I was sent to live in aged care. I have intense sensory sensitivities that worsen over time, when exposed to triggers. My home needs to be a low-chemical, low-noise, high-physical support environment – something impossible to find at present.
So I’m 35, living in aged care and now I’m locked into the facility.
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