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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Energy Impairment And Disability Inclusion
Sunday 3 May 2020
From the Centre for Welfare Reform:
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Energy Impairment and Disability Inclusion
Towards An Advocacy Movement For Energy Limiting Chronic Illness
Executive Summary
About the Project
The Chronic Illness Inclusion Project (CIIP) ran from 2017 to 2019 as part of the DRILL programme of research led by disabled people, for disabled people. We looked at the experience of chronic illness as a type of disability or, in the language of the UK Disabled People’s Movement (DPM), as an ‘impairment group’.
The CIIP was a programme of emancipatory research, aiming both to produce knowledge about people with chronic illness, and to begin to transform that knowledge from an individual experience into a collective struggle for change. Our research agenda evolved from the researchers’ lived experience of chronic illness, and their involvement in internet-based peer support networks and communities for chronic illness. It culminates in a manifesto for equality and inclusion, to be launched alongside this report.
We found compelling evidence that there is common experience and shared knowledge among people with chronic illness that is not heard or represented beyond our online networks, despite being a large subsection of the disabled population. The aim of this report is to bring the knowledge of the 2,300 people living with chronic illness who took part in our research closer to those who make decisions about our lives. Just as importantly, we propose strategies for amplifying our voice going forward.
Download the full report (PDF, 2.1 MB)
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Registered Charity 3104
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