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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

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Find Solace In The Instagram Communities For Women With Chronic Illnesses

Wednesday 1 April 2020

 

From Refinery29:

 

Don't Tell Us How A Sick Girl Should Look
(Image: Instagram)
 

Find Solace In The Instagram Communities For Women With Chronic Illnesses

By Tilly Armstrong
30 March 2020
© 2020 VICE MEDIA GROUP.

"I was suffering so much, and I just remember thinking, Oh my god, this is it now. This is my life." In 2013, when Mimi Butlin was at university, she got viral meningitis. "That was the trigger," she says, "and I just didn’t get better."

Eventually, Mimi was diagnosed with ME, a chronic condition which causes extreme tiredness and difficulty carrying out everyday activities. We all understand how debilitating pain can be, but it is difficult to comprehend it as a permanent state of being. Yet for some, this is a reality.

In the years since her initial diagnosis, 26-year-old Mimi has continually struggled with her health and has also been diagnosed with three other illnesses: fibromyalgia, connective tissue disorder Ehlers-Danlos syndrome and PoTS syndrome, a nervous system disorder which causes fainting.

In early 2019, as a way to deal with constant cycles of pain and discomfort which can leave her unable to get out of bed for days, Mimi started drawing portraits of celebrities who had spoken openly about living with a chronic condition and posting them on her Instagram account – @cantgooutimsick – alongside captions detailing their experiences.

 

Full article…

 


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