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Young And Forever Sick: 'They Didn't See Me As A Person Who Had Dreams'

Monday 2 March 2020


From The Guardian Australia:


Brain scan
For many young Australians with chronic illnesses,
the path to diagnosis has many roadblocks.
(Photograph: Viacheslav Iakobchuk/Alamy Stock Photo.)

Young and forever sick: 'They didn’t see me as a person who had dreams'

More than a third of young Australians live with one or more chronic illnesses – but growing up in fear of death can have its upsides.

By Olivia Gee
Monday 2 March 2020
© 2020 Guardian News & Media Limited or its affiliated companies. All rights reserved.

A strange mixture of terror and outrage floods your brain when your doctor says, “I had a patient like you, and when she missed her meds, her heart and lungs stopped. She died.”

Right. I get it: I need to take my epilepsy medication religiously.

It had already been a long road to this point. Two major nighttime seizures, two ambulance rides, claustrophobic brain scans, and an intense three-day relationship with 20 itchy electrodes. They revealed a lot: my heart sank as I was officially diagnosed with nocturnal frontal lobe epilepsy.

The drama of a life-threatening event is less of a sexy Grey’s Anatomy storyline and more like an emotionally exhausting House episode.


Full article…



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