Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS South Australia Inc

Registered Charity 3104


Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
DOCX Application Form (Word, 198 KB)
Why become a member?

EXCLUSIVE: Barely Able To Leave The House - Three ME Patients Reveal Their Daily Struggle With The Crippling Condition

Sunday 1 March 2020


From the Daily Mail Australia:


Nicola Magdalinis
Before being struck down with ME, Nicola Magdalinis, 36,
was a keen kickboxer who worked for a private art collector.

EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal their daily struggle with the crippling condition

  • It's a controversial condition that has been swept under the carpet for decades
  • But myalgic encephalomyelitis (ME) is physical - and is not made up by patients
  • Millions of lives across the world are being ruined by the unrelenting condition
  • Sufferers often left house-bound, confined to their beds and unable to move far
  • MailOnline spoke to three sufferers who spoke about their daily struggle

By Harry Howard and John Siddle for MailOnline
29 February 2020
© 2020 Daily Mail.

It's a controversial condition which leaves sufferers house-bound, confined to their beds, reliant on feeding tubes and even needing help to get them in the shower.

But myalgic encephalomyelitis (ME) has been beset by controversy for decades amid claims it is merely psychological.

Instead, the truth is that the condition, also known as chronic fatigue syndrome, is physical - not just made up by patients.

An estimated 250,000 people in the UK and one million people in the US live with the condition.

It affects their lives so severely they often spend their days in darkened rooms, unable even to watch TV or listen to music.

But despite the increasing evidence about the reality of ME, which affects 17million people across the world, it remains incurable, and many still think that sufferers are just lazy.

For them, even touch is intolerable and many are tube-fed. Others struggle to keep in full time employment and suffer relentless relapses as they push themselves to keep up.

The condition also causes extreme exhaustion, pain and brain fog, with the cruel hallmark that symptoms are made worse through bare minimal exertion.

Even going for a shower, or going to the toilet, can strike down a sufferer for days or even weeks.

In the hope of ending ignorance surrounding the crippling ailment, MailOnline has heard from three women who have suffered from ME for decades.


Full article…



blog comments powered by Disqus
Previous Previous Page