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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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EXCLUSIVE: Barely Able To Leave The House - Three ME Patients Reveal Their Daily Struggle With The Crippling Condition
Sunday 1 March 2020
From the Daily Mail Australia:
 Before being struck down with ME, Nicola Magdalinis, 36, was a keen kickboxer who worked for a private art collector. |
EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal their daily struggle with the crippling condition
- It's a controversial condition that has been swept under the carpet for decades
- But myalgic encephalomyelitis (ME) is physical - and is not made up by patients
- Millions of lives across the world are being ruined by the unrelenting condition
- Sufferers often left house-bound, confined to their beds and unable to move far
- MailOnline spoke to three sufferers who spoke about their daily struggle
It's a controversial condition which leaves sufferers house-bound, confined to their beds, reliant on feeding tubes and even needing help to get them in the shower.
But myalgic encephalomyelitis (ME) has been beset by controversy for decades amid claims it is merely psychological.
Instead, the truth is that the condition, also known as chronic fatigue syndrome, is physical - not just made up by patients.
An estimated 250,000 people in the UK and one million people in the US live with the condition.
It affects their lives so severely they often spend their days in darkened rooms, unable even to watch TV or listen to music.
But despite the increasing evidence about the reality of ME, which affects 17million people across the world, it remains incurable, and many still think that sufferers are just lazy.
For them, even touch is intolerable and many are tube-fed. Others struggle to keep in full time employment and suffer relentless relapses as they push themselves to keep up.
The condition also causes extreme exhaustion, pain and brain fog, with the cruel hallmark that symptoms are made worse through bare minimal exertion.
Even going for a shower, or going to the toilet, can strike down a sufferer for days or even weeks.
In the hope of ending ignorance surrounding the crippling ailment, MailOnline has heard from three women who have suffered from ME for decades.
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