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ME/CFS Australia Ltd
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Learning To Manage Our Chronic Illness: ME/Chronic Fatigue Syndrome

Wednesday 29 January 2020


From Irish news outlet


“For many chronic illnesses, it’s about a lifelong journey of
listening to your body and honouring what it needs —
managing, rather than curing — and sometimes
this does mean making big changes.”
(Picture: iStock/PA)

Learning to manage our chronic illness: ME/Chronic Fatigue Syndrome

By Abi Jackson
Tuesday 28 January 2020

WHEN your health is suddenly taken away from you, keeping hopeful can be difficult — especially if doctors aren’t entirely sure how to help.

This is a familiar scenario for many people affected by ME or Chronic Fatigue Syndrome (CFS), which affects an estimated 270,000-odd people in the UK and Ireland. Although awareness has improved, a lot of mystery and misunderstanding still surrounds the condition. The main symptom is debilitating fatigue (along with a host of other things, including pain, brain fog, dizziness, nausea and sleep problems), which can be immensely severe.

Linda Jones, a mum-of-two and company director from West Midlands, went from being a high-flying fitness fanatic with a buzzing social life, to losing almost everything after being diagnosed in 2002 aged 34.

“I lost six years of my life. I remember bits of it, but not most of it. I lost my home, everything,” says Jones.

At the height of the illness, some days she could barely move or speak. Her career, marriage and independence all ground to a halt.


Full article…



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