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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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My Pro-Tips For Planning My Days And Managing The Unexpected With Fibromyalgia
Wednesday 15 January 2020
From The Mighty (via Yahoo! Lifestyle):
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My Pro-Tips for Planning My Days and Managing the Unexpected With Fibromyalgia
What a difference a day makes. This is my mantra every single day as a fibromyalgia warrior. I find mornings difficult and must motivate myself even on the best of days. I was never an early bird, but fibro has put to rest any idea that I would miraculously become one.
Lack of a good night’s sleep due to drowsiness from sleeping pills makes me more tired than usual. Some mornings, there is a feeling like a chisel bisecting my head, my body has been run over by a lorry, and I have caught the deadliest flu. My joints ache, my muscles are sore and spasm, my hands shake, my skin hurts to be touched, my body feels like it is covered with creepy crawlies and is being used as a pin cushion, my facial spasms affect my ability to see straight. I am more tired than I knew was humanly possible, and I cannot think straight to save my life. What’s my name? Then the panic sets in. I am in the middle of a dreaded fibro flare. And I am alone with a full calendar and a to-do list which grows longer as I sleep.
Since I was diagnosed with fibromyalgia over two years ago, I have become better at managing the unexpected. I wish someone had suggested half of these things to me. So, I hope this helps even one person out there in our great community.
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