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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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You Don't Look Sick: 'I've Realised That Living With A Disability Is Not Embarrassing'
Monday 23 December 2019
From UK news outlet Metro.co.uk:
 Ellie Matthews |
You Don’t Look Sick: ‘I’ve realised that living with a disability is not embarrassing’
Ellie Matthews, 21, from Lingfield, Surrey, has fibromyalgia – a pain syndrome that causes fatigue, headaches, tingling, stiffness, brain fog, affects temperature control and digestion.
She was diagnosed with the condition in late 2018 after years of ongoing problems.
For our You Don’t Look Sick series, she tells Metro.co.uk: ‘I was having multiple ongoing issues with migraines, joint stiffness and pain.
‘It took a while for the doctors to recognise the possible link between my problems. I then got referred to a rheumatologist who put me through an assessment of my pain and pressure points across my whole body and discussed the other symptoms I was experiencing.
‘When I was diagnosed it definitely took a while for me to process what fibromyalgia is and what my next steps were. I couldn’t quite believe that I finally had this actual reason for my troubles.
‘I was sad at first, especially when I suffer from depression and anxiety. I became worried that people wouldn’t believe me or would put labels on me.
‘I eventually came to the realisation that my disability was in no way embarrassing or unimportant. If I didn’t have my fibromyalgia diagnosed I would have probably been a lot more sad, worn down in spirit and frustrated. A diagnosis has opened up so many doors for me for my current life and future.’
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