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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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One Day He Was 'Gifted', The Next He Couldn't String Together A Sentence
Wednesday 23 October 2019
 Ethan couldn't remember things that happened the day before. (Image: supplied) |
One day he was 'gifted', the next he couldn't string together a sentence
Once bright and energetic 12-year-old Ethan struggled to get out of bed in the morning. But, as his mum Shelley says, that was just the beginning.
At first, doctors prescribed bed rest. They thought it was a virus and they said you can’t really do anything for a virus, he’ll just get over it, they said.
But he couldn’t go to school. He'd drag himself out of bed and go, but the next day it was like a truck had hit him, he was so exhausted. That went on for six months.
I knew something was really wrong. I was very frustrated, and felt as though no one was listening to me. Ethan couldn’t concentrate, and he’d get irritated. ME has severe neurological effects so he basically shut down, he couldn’t string sentences together, he couldn’t find the words to speak. Ethan couldn’t remember things that had happened yesterday, and this is a kid who tested as academically gifted at school.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
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