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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Fibromyalgia And Chronic Fatigue Syndrome: The Gap Widens
Friday 20 September 2019
 The gap between ME/CFS and FM in terms of research funding, activity and energy is widening. |
Fibromyalgia and Chronic Fatigue Syndrome: The Gap Widens
The similarities are striking: the symptoms, the shoddy research funding, the poor treatment from doctors, the gender imbalance and the stigma both still face. Both diseases still really exist on the fringes of medicine and medical research.
Yet one disease is moving forward rapidly and the other is not – and it’s probably not the one you think.
That disease has a great name. That disease has three FDA drugs approved for it, a specialty it fits in (however awkwardly) and a home at the National Institutes of Health (NIH). The other disease has a putrid name, has no FDA drugs approved (and none in the pipeline), no specialty associated with it, no home at the NIH, and its community has a (mostly undeserved) reputation for being hard to deal with.
In almost every way, FM appears to have a leg up. With its much higher prevalence, it clearly has more financial and social resources potentially available to it. It has the attention of the drug companies, which have produced several phase II or III drug trials over the past couple of years. Plus, it’s embedded within a field (pain) that’s getting a lot more attention.
When it comes to numbers, there’s no contest: fibromyalgia affects ten million people in the U.S. and has a massive Facebook presence, while ME/CFS affects about a million and isn’t close on Facebook.
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