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Dear Doctor: What Not To Say To Me And Other Fibromyalgia Patients

Thursday 12 September 2019


From The Mighty (via Yahoo! Lifestyles):


Photo of young woman close up and looking down,
a strand of hair across her face.

Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients

By Rachel Ann
The Mighty
September 11, 2019
© 2019 Yahoo-HuffPost Lifestyles Network.

Dear Doctor,

I know you are overworked, underpaid and taken for granted by our government. I realize you can’t work miracles even if you wanted to and the NHS is on limited funding. All I’m asking is your time and human understanding for a better quality of life.

I have been ill since age 13. I have had nearly every test available. My diagnosis at present is myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia, with all the added symptoms and conditions they cause.

Unfortunately, I can only recall not even a handful of doctors who have been helpful. I understand there is no specific test and no cure as of yet, and treatment is hard to determine. But, I have reached a point where I am so deflated by going to another appointment and leaving feeling more ill, with more questions, and returning home trying to hold in the tears. I have had so many things told to me by doctors, some of which have been said to other patients in the same boat.


Full article…


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