ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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Dear Doctor: What Not To Say To Me And Other Fibromyalgia Patients
Thursday 12 September 2019
From The Mighty (via Yahoo! Lifestyles):
Dear Doctor: What Not to Say to Me and Other Fibromyalgia Patients
I know you are overworked, underpaid and taken for granted by our government. I realize you can’t work miracles even if you wanted to and the NHS is on limited funding. All I’m asking is your time and human understanding for a better quality of life.
I have been ill since age 13. I have had nearly every test available. My diagnosis at present is myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia, with all the added symptoms and conditions they cause.
Unfortunately, I can only recall not even a handful of doctors who have been helpful. I understand there is no specific test and no cure as of yet, and treatment is hard to determine. But, I have reached a point where I am so deflated by going to another appointment and leaving feeling more ill, with more questions, and returning home trying to hold in the tears. I have had so many things told to me by doctors, some of which have been said to other patients in the same boat.
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Registered Charity 3104
PO Box 322,
South Australia 5092
1300 128 339
Monday - Friday,
10am - 4pm