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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Social Media And Chronic Pain: The Good, The Bad, And The Ugly
Sunday 25 August 2019
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Social Media and Chronic Pain: The Good, The Bad, and The Ugly
When I was first diagnosed with Fibromyalgia in December 2009, I really didn’t know all that much about it. I had been in some degree of pain for many years, just not anything like this.
Being the research junkie that I am, I turned to the Internet to learn more about my newest challenge.
I was relatively new to Facebook at the time, but I did have one friend who had fibromyalgia and she pointed me in the direction of a support group.
I have never really minced words. I have probably occasionally overshared more than others. I always took the view of “this is who I am, either you like it or you don’t need to be a part of my life.” I found that more of my old friends stayed rather than left.
Of course, there were a few who automatically assumed I was a drug addict just because I was on pain medication.
You’ve met the type. They’re the ones who always say “if you just throw away your pills and go to the gym, your pain will go away and you will be just fine.”
I’ll get right on that.
No amount of reasoning will change their minds.
Believe me, I tried. I told my side. Some listened and stuck around.
Those who were completely convinced they were right were the first to be blocked.
Don’t need them and don’t miss them.
But that was 10 years ago and every single one of them is still out of my life. Realistically I discovered more supportive people than these set-in-their-ways judgmentally stubborn idiots.
Their loss. I’m awesome!
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