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ME/CFS Australia Ltd
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Registered Charity 3104


Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

1300 128 339

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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A Holiday Message For ME/CFS Sufferers And Caregivers

Wednesday 26 December 2018


From White House Chronicle:


White House Chronicle

A Holiday Message for ME/CFS Sufferers and Caregivers

By Llewellyn King
December 24, 2018
Copyright © 2018 White House Chronicle.

There are two holiday seasons. There is the one of joy, the one I’m lucky to celebrate. And there is the one those who suffer all year endure. It is also the one their caregivers struggle through.

At the end of the year, no matter their religion, the lonely find themselves lonelier, the confined more boxed in, and the broken more irreparable. The holidays can shine with love and they also can hurt.

Those of us who don’t have Myalgic Encephalomyelitis, also called Chronic Fatigue Syndrome, can only lend our hearts to those who do. We can seek to comfort and tell them that we know what they’re going through, but we don’t know. We can look, but we can’t know the terrible incarceration mandated by the disease: the life sentence.

A word about caregivers: The families, lovers and friends who know that these dear people, so loved, exist in a cruelly unequal world, isolated by pain and immobility. They are the people who must draw from the well of compassion over and over: today, tomorrow, next week, next month and next year, on and on. We can all be compassionate for a while, but to care for another permanently is noble, saintly and hard, hard work.


Full article…



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