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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Consultation On The ME/CFS Advisory Committee Report To The NHMRC Chief Executive Officer
Friday 21 December 2018
From the Australian Government's National Health and Medical Research Council:
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Consultation on the Myalgic encephalomyelitis and Chronic fatigue syndrome Advisory Committee Report to the NHMRC Chief Executive Officer
Closes on Monday, 18 February 2019, 11:59pm (AEDT)
The National Health and Medical Research Council (NHMRC) Myalgic encephalomyelitis and Chronic fatigue syndrome (ME/CFS) Advisory Committee (the Committee) is releasing the draft ME/CFS Advisory Committee Report to the NHMRC Chief Executive Officer (the draft Report) for public consultation. The Committee invites the Australian community to provide comments on its draft Report (Attachment A) before finalising and providing it to NHMRC’s CEO. The Committee’s report to the CEO will help to inform decisions about what NHMRC can do given its dual role in supporting health and medical research and developing evidence based health advice for the Australian community.
The aim of public consultation on the draft Report is to obtain feedback on:
1) Does the draft Report provide an accurate summary of:
- the difficulties faced by ME/CFS patients in receiving clinical care
- the challenges facing clinicians in providing care when there is lack of clarity on diagnostic and management tools, and minimal professional education about the condition?
2) Do the research and clinical guidance recommendations accurately:
- address the specific needs of the ME/CFS community
- provide an accurate representation of the current gaps in research
- inform the CEO of research options and clinical guidance needs that are relevant for ME/CFS patients?
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)