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ME/CFS Australia Ltd
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Registered Charity 3104


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PO Box 322,
Modbury North,
South Australia 5092

1300 128 339

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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Consultation On The ME/CFS Advisory Committee Report To The NHMRC Chief Executive Officer

Friday 21 December 2018


From the Australian Government's National Health and Medical Research Council:



Consultation on the Myalgic encephalomyelitis and Chronic fatigue syndrome Advisory Committee Report to the NHMRC Chief Executive Officer

Closes on Monday, 18 February 2019, 11:59pm (AEDT)

The National Health and Medical Research Council (NHMRC) Myalgic encephalomyelitis and Chronic fatigue syndrome (ME/CFS) Advisory Committee (the Committee) is releasing the draft ME/CFS Advisory Committee Report to the NHMRC Chief Executive Officer (the draft Report) for public consultation. The Committee invites the Australian community to provide comments on its draft Report (Attachment A) before finalising and providing it to NHMRC’s CEO. The Committee’s report to the CEO will help to inform decisions about what NHMRC can do given its dual role in supporting health and medical research and developing evidence based health advice for the Australian community.

The aim of public consultation on the draft Report is to obtain feedback on:

1) Does the draft Report provide an accurate summary of:

  • the difficulties faced by ME/CFS patients in receiving clinical care
  • the challenges facing clinicians in providing care when there is lack of clarity on diagnostic and management tools, and minimal professional education about the condition?

2) Do the research and clinical guidance recommendations accurately:

  • address the specific needs of the ME/CFS community
  • provide an accurate representation of the current gaps in research
  • inform the CEO of research options and clinical guidance needs that are relevant for ME/CFS patients?


Full article…



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