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ME/CFS SOUTH AUSTRALIA INC

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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Holiday Advocacy Victory: 42 Members Of Congress Sign On To Support People With ME/CFS

Wednesday 19 December 2018

 

From the Solve ME/CFS Initiative (via email):

 

Solve ME/CFS Initiative
 

Holiday Advocacy Victory: 42 Members of Congress Sign on to Support People with ME/CFS

December 18, 2018

Thanks to another strong turnout from the ME/CFS advocacy community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter to the U.S. Department of Health and Human Services (HHS) in support of people with ME/CFS. The bicameral letter was sponsored by Senator Ed Markey (MA) in the Senate and Congresswoman Anna Eshoo (CA-18) in the House of Representatives. The letter was drafted as an urgent response to the sudden termination of the Chronic Fatigue Syndrome Advisory Committee (CFSAC). The letter does the following:

(1) States that more must be done by HHS to address ME/CFS needs,

(2) Describes the challenges we face,

(3) Requests that HHS explain how it will fill the gap left by the September 2018 dissolution of CFSAC,

(4) Poses detailed questions regarding the ME/CFS activities and plans of the National Institutes of Health and Centers for Disease Control, and

(5) Requests a formal response from HHS by January 12, 2019.

The letter was signed by:

STATE

NAME

TWITTER

FACEBOOK

CA

Dianne Feinstein

@SenFeinstein

www.facebook.com/SenatorFeinstein/

CA

Kamala D. Harris

@SenKamalaHarris

www.facebook.com/SenatorKamalaHarris/

CT

Richard Blumenthal

@SenBlumenthal

www.facebook.com/SenBlumenthal

DE

Christopher A. Coons

@ChrisCoons

www.facebook.com/senatorchriscoons

MA

Edward J. Markey

@SenMarkey

www.facebook.com/EdJMarkey

MA

Elizabeth Warren

@SenWarren

www.facebook.com/senatorelizabethwarren

MD

Chris Van Hollen

@ChrisVanHollen

www.facebook.com/chrisvanhollen/

ME

Angus S. King, Jr.

@SenAngusKing

www.facebook.com/SenatorAngusSKingJr

MI

Debbie Stabenow

@SenStabenow

www.facebook.com/SenatorStabenow/

NJ

Cory A. Booker

@SenBooker

 

NV

Catherine Cortez Masto

@SenCortezMasto

www.facebook.com/SenatorCortezMasto/

OH

Sherrod Brown

@SenSherrodBrown

www.facebook.com/SenatorSherrodBrown/

PA

Robert P. Casey, Jr.

@SenBobCasey

www.facebook.com/SenatorBobCasey

WA

Maria Cantwell

@SenatorCantwell

www.facebook.com/senatorcantwell/

 

STATE-
DISTRICT

REPRESENTATIVES

TWITTER

FACEBOOK

AZ-03

Raúl M. Grijalva

@RepRaulGrijalva

www.facebook.com/Rep.Grijalva

AZ-09

Kyrsten Sinema

@RepSinema

www.facebook.com/CongresswomanSinema/

CA-02

Jared Hoffman

@RepHuffman

www.facebook.com/RepHuffman

CA-06

Doris Matsui

@DorisMatsui

http://go.solvecfs.org/e/192652/doris-matsui/scw2l/93529027?h=1Z39YPkmvgUfquyI74XcEVHMhxMYDyZ9UOZ0H6gtjSg

CA-11

Mark DeSaulnier

@RepDeSaulnier

www.facebook.com/RepMarkDeSaulnier

CA-13

Barbara Lee

@RepBarbaraLee

www.facebook.com/RepBarbaraLee

CA-14

Jackie Speier

@RepSpeier

www.facebook.com/JackieSpeier

CA-15

Eric Swalwell

@RepSwalwell

www.facebook.com/CongressmanEricSwalwell

CA-18

Anna G. Eshoo

@RepAnnaEshoo ‏

www.facebook.com/RepAnnaEshoo

CA-19

Zoe Lofgren

@RepZoeLofgren

www.facebook.com/zoelofgren

CA-26

Julia Brownley

@JuliaBrownley26

www.facebook.com/RepJuliaBrownley

CA-33

Ted Lieu

@RepTedLieu

www.facebook.com/RepTedLieu

CA-47

Alan Lowenthal

@RepLowenthal

www.facebook.com/RepLowenthal

CO-06

Mike Coffman

@RepMikeCoffman

www.facebook.com/repmikecoffman

CO-07

Ed Perlmutter

@RepPerlmutter

www.facebook.com/RepPerlmutter

CT-05

Elizabeth H. Esty

@RepEsty

www.facebook.com/RepEsty

GA-05

John Lewis

@repjohnlewis

www.facebook.com/RepJohnLewis

MA-02

Jim McGovern

@RepMcGovern

www.facebook.com/RepJimMcGovern/

MA-04

Joseph P. Kennedy, III

@RepJoeKennedy

www.facebook.com/CongressmanJoeKennedyIII/

MA-05

Katherine Clark

@RepKClark

 

MA-06

Seth Moulton

@teammoulton

www.facebook.com/RepMoulton

MA-08

Stephen F. Lynch

@RepStephenLynch

www.facebook.com/repstephenlynch

MD-08

Jamie Raskin

@RepRaskin

www.facebook.com/RepRaskin/

MD-02

C.A. Dutch Ruppersberger

@Call_Me_Dutch

www.facebook.com/RepDutchRuppersberger

ME-01

Chellie Pingree

@chelliepingree

www.facebook.com/ChelliePingree/

NH-02

Ann McLane Kuster

@RepAnnieKuster

www.facebook.com/CongresswomanAnnieKuster

NJ-12

Bonnie Watson Coleman

@RepBonnie

www.facebook.com/RepBonnie/

OH-14

David Joyce

DaveJoyceOH14

www.facebook.com/DaveJoyceOH/

If your member of Congress is listed above, please thank them for their support! You can sign our ME/CFS Community thank you card here. Please also consider thanking them on social media. Member twitter handles and Facebook pages are listed above. If your members of Congress are not listed, please reach out to their offices and ask why they did not sign and what we can do to obtain their support next time.

This month’s joint action on Capitol Hill was executed as a partnership among #MEAction, the Solve ME/CFS Initiative, and the Massachusetts ME/CFS & FM Association.

 

Full article…

 


 

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