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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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5 Dilemmas Faced By The Chronically Ill As They Age
Saturday 10 November 2018
 (Source: Pixabay) |
5 Dilemmas Faced by the Chronically Ill as They Age
It can be hard to know what is due to aging as opposed to chronic illness.
I’ve been concerned lately. Here’s why.
In 2001, I got sick with what the doctors assumed was an acute viral infection, but I never recovered. I’m mostly housebound, often bedbound. My diagnosis is the little understood (but much misunderstood) Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome or ME/CFS. I describe it as “the flu without the fever.” This means that fatigue is only one of many symptoms I contend with every day. In addition, before I got sick, I suffered from a couple other chronic conditions, such as painful Interstitial Cystitis (IC). If I’m in an IC flare, it exacerbates the symptoms of my ongoing ME/CFS.
I’m now 17 1/2 years older than when I became chronically ill in 2001. I’ve started to notice some bodily changes, and I can’t tell if they’re due to a worsening of my illness or if they’re a natural part of the aging process. I know from emails sent to me that others in my situation face the same uncertainty.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
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(phone)