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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Rest In Power, CFSAC
Monday 10 September 2018
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Rest In Power, CFSAC
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) is dead. Both the website and the email listserv made the announcement on September 6th: “The charter for the Chronic Fatigue Syndrome Advisory Committee expired on September 5, 2018.”
A sudden death under unusual circumstances necessitates an autopsy.
One of the major aspects of my advocacy career has been CFSAC-watch. I believe that the end of CFSAC is a significant blow to the ME community, but I also know that we can overcome this damage. I have many more words to say, but in this post I will address:
- Who knew the charter was at risk
- Why the committee may have been killed
- Why this matters
- What happens next
- Statements from
ninetwelve committee members (voting/non-voting) (updated September 7th at 6pm)
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