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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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"The Great Chronic Fatigue Syndrome Community Gene Study" Breaks New Ground
Tuesday 4 September 2018
 The ME/CFS Genetic Database Study has already uncovered one genetic weakness in ME/CFS. With your help, it will uncover more. |
“The Great Chronic Fatigue Syndrome Community Gene Study” Breaks New Ground
It’s a bold idea. Get people with chronic fatigue syndrome to contribute their 23andME or Ancestry.com data and the researchers will do the rest. Nancy Klimas’s project at the Institute for Neuroimmune Medicine at Nova Southeastern University ultimately aims to analyze the genetic data of 10,000 ME/CFS patients in order get at the genetic issues that virtually everyone believes are part of chronic fatigue syndrome (ME/CFS).
A genetic weakness almost surely provided the flint that helped light the fire which plunged so many people into ME/CFS when an infection or some other biological insult occurred. There’s hard evidence that this is true. A 2011 ME/CFS University of Utah study (featuring Lucinda Bateman) concluded there was “strong support for a heritable contribution to predisposition to Chronic Fatigue Syndrome“. That study found elevated risks for ME/CFS even among third-degree relatives; i.e. great grandparents and second cousins (!). Since only 1/8th of our genetic material is shared with these relatives, finding that ME/CFS was showing up even in them suggests a strong genetic component is present – it simply needs to be found.
That’s what “The Great Chronic Fatigue Syndrome Community Gene Project” (my name for it) otherwise known as the “ME/CFS Genetic Database Study” from Nancy Klimas’s group at Nova Southeastern University is attempting to do. The beauty of the study is that it’s a community sourced project – you provide the data – they analyze the results.
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