Society Logo
ME/CFS Australia Ltd
Please click here to donate ME/CFS South Australia Inc

Registered Charity 3104


Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Become a Member
DOCX Application Form (Word, 198 KB)
Why become a member?

Why ME, Or Yuppie Flu, Is Like AIDS Was Once – Misunderstood Or Dismissed As Not Real, And Ignored By Most Doctors

Thursday 16 August 2018


From Chinese newspaper the South China Morning Post:


Millions Missing
A woman holds a sign for patients suffering from ME
during “Millions Missing” rally in London. Those with
the illness are known as the “missing millions”, as
they have had to drop out of everyday life.
(Photo: Alamy)

Why ME, or yuppie flu, is like Aids was once – misunderstood or dismissed as not real, and ignored by most doctors

Twenty million people suffer from myalgic encephalomyelitis, yet there is still no test for it, nor any approved treatment. We talk to a mother whose daughter has the illness, and who has consulted dozens of doctors in search of help.

By Anthea Rowan
Monday, 30 July, 2018
Copyright © 2018 South China Morning Post Publishers Ltd. All rights reserved.

Until my friend Caroline introduced me to myalgic encephalomyelitis, or ME, I didn’t know much about it. It was yuppie flu, a sort of tired opting out of life, I thought. And until she had to acquaint herself with the illness, Caroline didn’t know much about it, either.

“What I did know was vague; I had no understanding of it,” she recalls.

Three years ago, after contracting meningitis, her daughter, Saskia, just 20 at the time, succumbed to the illness. Since then Saskia has been mostly confined to bed and Caroline, as her primary carer, has had to try to understand an illness most doctors still know little about.

ME is also known as CFS, for chronic fatigue syndrome, another name that does nothing to dispel the connotations with laziness and self-pity that its other name, yuppie flu, evoked when the first reports of the illness emerged two decades ago.

UK-based NGO the Grace Charity for ME does the best job of describing the illness by breaking the name down into simple parts to demonstrate the ghastly breadth of issues thrown up by the condition, which affects multiple organs of the body.

This is its explanation: “My-” refers to muscle; “-algic” means pain; “Encephalo” means brain; “-myel-” refers to the spinal cord; and “-itis” stands for inflammation.

ME can be triggered by many things, most often an infectious disease – meningitis in Saskia’s case. It presents itself as a multi-system illness, affecting not only the neurological system but also the immune, musculoskeletal, endocrine (hormonal) and cardiovascular systems. There is still no test for it, nor any cure or approved treatment.


Full article…



blog comments powered by Disqus
Previous Previous Page