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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Taiwan Group Calls For Public Awareness Of Fibromyalgia
Friday 27 July 2018
From Taiwanese newspaper the Taipei Times:
 Kawlo Iyun Pacidal |
Group calls for public awareness of fibromyalgia
The Taiwan Fibromyalgia Association (TFA) and New Power Party Legislator Kawlo Iyun Pacidal yesterday called for better public awareness of fibromyalgia, as it is difficult to diagnose and symptoms are not obvious to the naked eye.
Fibromyalgia is also known as “the invisible disease,” because the pain experienced by those who have it is not obvious to others, association executive director Zoe Wei (魏嘉伶) said.
“Fibromyalgia is a disorder characterized by chronic and widespread musculoskeletal pain, often accompanied by sleep disorder, memory loss, mood swings and other complications,” she said.
Globally, there are an estimated 16 million to 40 million people who have fibromyalgia, she added.
There are also many fibromyalgia patients in Taiwan, but the disease is often left undiagnosed, Wei said, citing as an example a family member who had sought treatment in six different medical departments, including mental health, before finding a doctor who diagnosed the condition as fibromyalgia.
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