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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Hornchurch Woman Unable To Speak From Severe Fatigue Condition Challenges Carers To 24 Hours Of Silence
Thursday 26 July 2018
From UK newspaper the Romford Recorder:
 L-R: Margaret, Katy Hughes, Claire, Ciler and Amanda Jane Hendrie will be remaining silent for 24 hours to raise funds and awareness for people living with severe ME. (Picture: Amanda and her carers.) |
Hornchurch woman unable to speak from severe fatigue condition challenges carers to 24 hours of silence
Hornchurch resident with a severe chronic fatigue syndrome is challenging her carers to remain silent for 24 hours to raise funds and awareness.
Amanda Jane Hendrie has severe Myalgic Encephalomyelitis (ME) a chronic condition which limits a person’s ability to carry out ordinary daily activities.
For Amanda, this means being bed bound 24/7, tube fed and living with multiple systemic symptoms.
Once a year on Severe ME Remembrance and Awareness day on August 8 Amanda runs an online campaign called The Silence Challenge for Severe ME to raise funds for the 25per cent ME Group charity which she describes as a, “lifeline”.
With the aid of her carers, she told the Recorder: “I can’t speak due to the muscle problems experienced with ME, so I need to communicate with my carers via signs - which is like a game of charades at times.
“One year as it was approaching Severe ME Remembrance and Awareness day, during a game of charades with my carer, I challenged her and all my carers to a sponsored 24 hour silence to raise awareness and funds for this charity.
“This challenge went online and is now an annual event to sponsors my carers, plus others to take part and do their own sponsored silence.”
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