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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Preston Woman On An ME Mission
Wednesday 25 July 2018
From UK newspaper The Blackpool Gazette:
 Dr Raymond Perrin, Preston North and Wyre MP Ben Wallace and Cathy Vandome who is battling ME. |
Preston woman on an ME mission
This week could be a crucial one for up to 250,000 people suffering from ME. Health body NICE is updating NHS guidelines. And specialist Dr Raymond Perrin has put forward a simple way of diagnosing it. TIM GAVELL talks to Preston resident Cathy Vandome – who has also been supported by her MP Ben Wallace.
Cathy Vandome was a whirlwind of energy – running a stage school, working as a stand-up comedian and singer as well as performing as the UK’s top Jessie J tribute act.
She ran two businesses, wrote musical shows for the children who came to her classes and says it was normal to go to bed at 2am after being on stage and then get up at 5am to write her next show. Her idea of relaxation was to go to a Zumba class.
But one day in February 2014 that all changed. At the age of 39 she collapsed in debilitating pain which she describes as “so unbearable it was like being hit by a truck, having broken every single bone in my body and then being set on fire. My head was so inflamed it felt as though it had been blown up like a balloon”.
She had tremors, memory loss, chronic aversion to sound, major problems with her inner ears, vertigo. She ended up bed-bound. She had been struck down with ME, or Chronic Fatigue Syndrome (CFS). The pain and chronic lack of energy were bad enough, but worse was the fact that so many people did not believe that ME was a real condition. They thought it was “just in her head”.
Cathy says the diverse range of symptoms that people with ME suffer and the variety of causes have meant it has been hugely difficult to diagnose and treat in the 60 years it has been known.
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Registered Charity 3104
Email:
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