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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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Don't Get Ticked Off
Monday 9 July 2018
From UK news outlet Newbury Today:
 Lucinda Edwards, from Beenham |
Don't get ticked off
Angela Knight talks to Beenham resident Lucinda Edwards about the impact Lyme disease has had on her life.
For 25 years, former model, Lucinda Edwards, from Beenham, struggled with what she was told was ME (Myalgic encephalomyelitis).
She suffered from overwhelming fatigue, burning muscle pain, memory and sleep problems, headaches, heart palpitations and many other symptoms.
She and her family spent thousands of pounds trying to get her well. She had visited US clinics five times, including the renowned Mayo Hospital in Minnesota, for treatment, and no doctor diagnosed Lyme disease. Three years ago, she sent her blood to a specialist German lab where Lyme disease was diagnosed. She does not know how she caught it and never saw a tick bulls-eye rash.
When she found out that what she had was Lyme disease and not ME, she says: “I was angry – very, very angry! I felt really let down that so many doctors, hospitals and clinics had misdiagnosed me and had dismissed my illness as psychological. I had to begin a major fight to get better from this truly devastating and debilitating Lyme illness.”
Lucinda’s progress has been a long haul: “At times I feel like the climb is too steep and has gone on for too long. I cannot tolerate antibiotics and even the strong Lyme herbal remedies make me ill. I am working with a specialist Lyme naturopath in Basingstoke, but it is often one step forwards two steps back.
“I am a long way from what I would describe as a decent quality of life with reasonably good health. I really feel I am still at base camp with Mount Everest to climb.”
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Registered Charity 3104
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