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ME/CFS Australia Ltd
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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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10 Things About Living With M.E. That You Want People To Know By Jessica Taylor-Bearman

Wednesday 4 July 2018


From Female First:


Jessica Taylor-Bearman
Jessica Taylor-Bearman

10 Things About Living With M.E. That You Want People To Know By Jessica Taylor-Bearman

Jessica Taylor-Bearman writes a piece for us upon the release of her new book A Girl Behind Dark Glasses.

By Jessica Taylor-Bearman
3 July 2018
© 2018 FemaleFirst Ltd. all rights reserved.

I have been suffering with a chronic neuro immune disease for over twelve years called M.E. It stands for Myalgic Encephalomyelitis and remains very misunderstood in all aspects. You may have heard of it called by a multitude of different names including Chronic Fatigue Syndrome and sadly still, Yuppie Flu.

  1. There are so many things we do not know about M.E. but most importantly one thing we do know is that contrary to popular believe, M.E. is not 'all in the mind'. It’s a physical condition that affects sufferers to different degrees. There is such a vast spectrum. For example, when I first got M.E. I lost everything and I couldn’t go to school. Instead all I could do was lie in a darkened room. Other sufferers, despite symptoms, can still just about go to work for a short amount of time even if they become more ill afterwards.
  2. It is not a rare condition. In fact, 250,000 people in the U.K are suffering from it in some form, and 25 percent of these are severely affected. I have over sixty symptoms that stop me from being able to live an active life. They fluctuate throughout the day, leaving life to often be crippling. In my day, I can lose my speech and movement from doing anything that involves exerting myself for a small amount of time.


Full article…



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