|
ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
| Become a Member | ||||
|
||||
There Was A Political Tremor This Week Over One Of The World's Most Neglected Diseases
Saturday 9 June 2018
 |
There was a political tremor this week over one of the world’s most neglected diseases
There was a sudden flurry of political activity during the past week over one of the most under-researched and stigmatised diseases going: myalgic encephalomyelitis/chronic fatigue syndrome, commonly referred to as ME/CFS or ME.
A debilitating disease
ME is a chronic systemic neuroimmune disease. It affects an estimated 17 million people worldwide and around 250,000 people in the UK. But the disease has been fraught with controversy. Not least because for decades (and often still to this day), the medical profession has not properly recognised it. So campaign groups like #MEAction are trying to raise awareness of the disease. And it now seems their message, and that of the ME community as a whole, is dripping through to our politicians.
ME in parliament
On Tuesday 5 June, SNP MP Carol Monaghan brought an early day motion, one she’d previously raised, to the House of Commons backbench business committee. Monaghan was hoping to secure a full parliamentary debate into ME. And she partly did; managing to get a three-hour Westminster Hall debate on 21 June. Monaghan said in her evidence to the committee:
"The big issue for people living with ME is that there has been a dearth of funding into biomedical research. The major funding so far was for a very controversial piece of research called the PACE trial. It considered ME to be a psychological condition, not a pathological one… [ME] is very poorly funded, and most of that funding actually comes from ME charities."
blog comments powered by Disqus
Previous Page |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)