![]() ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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UK Woman With 'Invisible Illness' That Took More Than Two Decades To Diagnose Wants People To Know What It's LikeFriday 25 May 2018
From UK news service NottinghamshireLive:
Arnold woman with 'invisible illness' that took more than two decades to diagnose wants people to know what it's like I can cope with all it can throw at me, but the real punch to the stomach is not being believed or being disregarded. This Arnold woman may look perfectly well – but she is suffering from a debilitating and frightening 'invisible illness' which took more than 20 years to be diagnosed. Nicola Gray, 43, suffers from exhaustion so extreme that her "life has changed beyond recognition" and she can no longer socialise or work full-time. This is caused by Myalgic Encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), and her other symptoms include finding it difficult to concentrate and remember things and suffering severe pain. Ms Gray, a learning mentor in Sneinton, told the Post: "I have gradually, over many years, found socialising virtually impossible - the energy required and sensory overload, the pain management, the cognitive confusion (the list goes on) makes being out and about extremely difficult.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)