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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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May 12: International ME/CFS And Fibromyalgia Awareness Day
Saturday 12 May 2018
From the US Centres for Disease Control and Prevention (CDC):
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May 12 is ME/CFS and Fibromyalgia International Awareness Day
May 12 is ME/CFS and Fibromyalgia International Awareness Day.
Myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS) is a serious, long-term illness characterized by substantial disability affecting daily activities. It is accompanied by profound fatigue that is not relieved by rest. While varying by person and affecting many body systems, symptoms include severe fatigue, unrefreshing sleep, dizziness, problems thinking and concentrating, pain, and worsened memory. Post-exertional malaise (PEM), a distinguishing feature of the illness, is the worsening of symptoms after physical or mental activity.
Scientists have not determined the cause or causes of ME/CFS. Although more common in women, ME/CFS affects people of all ages, including children, and people of all races and ethnicities. Individuals with ME/CFS, their families and caregivers, employers, and society endure significant costs associated with ME/CFS. These costs are estimated to be $18-51 billion annually in the United States. Researchers estimate that at least one million Americans have ME/CFS but, among people with ME/CFS identified through public health efforts, fewer than 1 of 5 people reported having received a diagnosis from a healthcare provider. This means that the illness is frequently not being diagnosed.
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How to Participate in ME/CFS Awareness Day
ME/CFS Awareness Day is being observed around the world in many different cities and countries. This day helps bring awareness to ME/CFS patients, families, caregivers, and researchers. You can show your support by a range of activities:
- Wearing the color blue on May 12, 2018.
- Looking for and supporting local ME/CFS events in your community.
- Considering planning an event if there is not one in your community.
- Sharing your personal stories about ME/CFS.
- Telling a neighbor or friend about ME/CFS.
- Learning more about ME/CFS.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)