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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Fighting Disbelief: Chronic Fatigue Syndrome
Thursday 5 April 2018
SBS's The Feed aired a heartbreaking and powerful segment on ME/CFS by Simon Cunich, highlighting barriers faced by people with ME/CFS in accessing desperately needed help through the NDIS.
Thank you to those with ME/CFS who put their health on the line to show what this illness is really like and to all involved in telling this completely personal yet also very political story.
David Tuller, investigative journalist and public health academic, who is exposing the flawed 'science' behind some of the barriers: "I felt like if I stopped, I'd be killing people."
Susan, who has ME/CFS: "I have so much to be able to give... but I need help."
RACGP President, Dr Bastian Seidel: "It's a genuine concern that patients who do have chronic fatigue syndrome really experience prejudices when they seek medical care."
Watch it. Share it. Send the link to your health practitioners. Send it to your federal MP. Join us in seeking a fair go for people with this devastatingly disabling condition.
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FIGHTING DISBELIEF: CHRONIC FATIGUE SYNDROME
We used to think Chronic Fatigue Syndrome was imaginary. Now we know better. So why is it still so hard to get support from the NDIS?
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)