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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Patients With 'Invisible' Chronic Pain And Fatigue Illnesses Still Fighting For Recognition
Tuesday 30 January 2018
From Irish news outlet TheJournal.ie:
 (Image: Michelle Hennessy/TheJournal.ie) |
Patients with 'invisible' chronic pain and fatigue illnesses still fighting for recognition
Campaigners told TDs this week that they need a review of these conditions in Ireland so they are recognised and so that patients can access proper treatment and supports.
PATIENTS SUFFERING FROM illnesses with debilitating symptoms such as chronic pain and fatigue have said they are still fighting to have their conditions recognised.
People Before Profit TD Gino Kenny hosted a presentation earlier this week in the Dail with speakers from fibromyalgia and Myalgic Encephalomyelitis (ME).
ME is a neurological disorder that affects multiple systems of the body and often follows an acute viral infection. Sufferers experience brain inflammation, headaches, bone and muscle pain, swollen lymph nodes, muscle spasms, seizures, vision abnormalities, bowel dysfunction and cardiovascular abnormalities.
There is no official data on prevalence in Ireland, but campaigners estimate there are 12,000 to 14,000 people living with ME in Ireland.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
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(phone)