![]() ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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UK CFS/ME Research Collaborative Conference 2017Wednesday 10 January 2018
UK CFS/ME Research Collaborative Report of the fourth Annual Science Conference 13 and 14 September 2017, Bristol Sponsored by the Medical Research Council and Arthritis Research UK Uniting behind a common goal Now in its fourth year, the UK CFS/ME Research Collaborative (CMRC)’s annual conference, held in Bristol in September 2017, brought together scientists, clinicians, industry professionals and people affected by M.E. The buzz this year was palpable. For me, it really feels like the mood has changed, and that everyone there felt able to unite behind a common goal – to unlock the biology of M.E. It’s a feeling echoed elsewhere. Since the conference, the US National Institutes of Health has announced four grants for CFS/ME research totalling more than $7 million, with the aim of establishing a coordinated scientific research network, with three research centres and a data management site working as a consortium to further the understanding of CFS/ME. I look forward to exploring how the CMRC can contribute to, and build on, such powerful foundations. On behalf of the CMRC Executive Board I extend a sincere thank you to all those whose energy and enthusiasm made the conference possible, including our sponsors the Medical Research Council and Arthritis UK, and to delegates and speakers who travelled from America, Australia and Europe. My particular thanks go to volunteers Karen Hainsworth, Emily Beardall, Katrina Pears, Rachel Ephgrave and Charlotte Stephens, who dedicated considerable time and energy to write this report, with contributions from Dr Charles Shepherd, Honorary Medical Advisor, ME Association, and Clare Ogden, Head of Communications and Policy, Action for M.E. I am also hugely grateful to the Action for M.E. staff team, led by Sonya Chowdhury, for organising the conference, and for filming the presentations – which have been viewed more than 7,400 times since at www.tinyurl.com/actionformeyoutube With input from patients and professionals at the conference, we are already thinking about next year’s event (see p 49), and what needs to happen to make it truly patient-centred. As someone with a keen interest in M.E. research, your input will be invaluable. Please, join us – I hope to see you there. Stephen Holgate
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