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Time For Unrest: Why Patients With ME Are Demanding Justice

Monday 8 January 2018


From UK newspaper the Independent:


Jennifer Brea
Jennifer Brea
(Photo: Jason Frank Rothenberg)

Time for Unrest: Why patients with ME are demanding justice

A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.

By Nathalie Wright
January 7, 2018

“I feel seen for the first time!” exalts one viewer. “I feel vindicated. I finally understand what’s wrong with me, I think I’ve had this all my life,” says another. A doctor admits, “I feel so ashamed.”

The film in question is Unrest, a documentary directed by and featuring Jennifer Brea, a former Harvard PhD student who, after developing the disease ME, started filming her experience. For those not directly affected by the illness, their go-to reference may be one of the many stereotypes that have proliferated in the British media: ME is “yuppie flu”; it’s an illness of lazy people or type-A personalities, malingerers, hysterical women, militant activists, scroungers, even people who are “a bit tired” and “don’t feel like going to work today” (according to a Ricky Gervais standup routine). For the first time, a major documentary is speaking back to decades of misinformation and showing what often doctors don’t even see: the daily life of sufferers, of whom there are about 260,000 in the UK.


Full article…



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