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About ME: Shining A Light On A Debilitating Disease Many Believe Doesn't Exist

Thursday 30 November 2017


From The Irish Times:


Jennifer Brea
Jennifer Brea in “Unrest”: She developed ME
following a fever that left her bedbound
while studying for her PhD at Harvard.
(Photo: Jason Frank)

About ME: Shining a light on a debilitating disease many believe doesn't exist

By Sylvia Thompson
November 28, 2017

It is disconcerting being at a public event with a group of people, most of whom are suffering from an illness that they feel is misunderstood, and often misdiagnosed and mistreated.

Such was my experience at the screening of Unrest, a compelling documentary about people suffering from myalgic encephalomyelitis (ME), made by American ME sufferer Jennifer Brea.

In the film, Brea gives a graphic account of how, following a fever that left her bedbound while studying for her PhD at Harvard, she developed ME. We see her struggling up stairs on all fours and collapsing on the ground outside her home, unable to move. In her attempt to better understand the condition, Brea connected with people all over the world suffering from ME. In Unrest, we see these men and women – often in bed – and hear their stories too.


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