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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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'The Most Common Disease You've Never Seen': How One Woman Turned Her Illness Into A Life-Changing Film
Saturday 9 September 2017
From UK newspaper The Telegraph:
 Filmmaker Jennifer Brea, who has CFS |
'The most common disease you've never seen': how one woman turned her illness into a life-changing film
Jennifer Brea was 28 when she was bedridden with a high fever. As she explains, "I got better, but something wasn't right." She, like millions of people worldwide, had contracted Chronic Fatigue Syndrome, or myalgic encephalomyelitis, otherwise known as ME.
Suddenly, her life as she knew it, as a newlywed PhD student at Harvard University, was put on hold, as she became progessively more ill, losing even the ability to sit in a wheelchair. Doctors told her that her condition was “all in her head”. There was, and remains, no cure.
Then, four years ago, from her bed, Brea began to make a film about her experiences after keeping a video diary with her iPhone. In doing so, she gave a voice to those who suffer from "the most common disease you've never seen", and encouraged scientists and medical professionals to plough their energies into unravelling a condition that has mystified physicians for years.
Unrest won a prize at Sundance film festival earlier this year, and became one of the first titles to be released with the support of Sundance Institute’s Creative Distribution Fellowship, which aims to empowering entrepreneurial Sundance filmmakers.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
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