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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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ME & My CFS Documentary
Thursday 23 April 2015
UK ME/CFS sufferer Andrew Love is hoping to make a documentary:
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ME & My CFS Documentary
So in the last few days I have received a large influx of people submitting to the content form and contacting me about the project.
It became clear to me that several key points about the project have not been made clear, which is what I am going to do here.
Firstly, Who am I?
Being as the form was asking for some personal info I can understand that you would want to know who is collecting it, and why. so here we go.
I should make it clear that I am not a professional documentary producer.
I am producing this because “ME/CFS” affects me, and I want to do something which could help someone else in my position.
My name is Andrew Love, I am a 17 year old student (currently doing A-Levels) living in the east of England with my parents, I suffer from a condition called POTS (Postural Orthostatic Tachycardia Syndrome), which is sometimes strongly linked to cases of CFS.
(You can read a bit about it here. It will also be addressed in the documentary.)
I go by the online name of Razeor which I used to post daily gaming content over on YouTube. (This is something I would like to get back to being as I enjoyed it so much.)
You may have also noticed Katie Hart. Katie is my cousin (She also suffers from ME/CFS) She goes by the online title of “livinginbed” I’ll leave her to make her own introductions.
Secondly, Money?
I realized I haven’t said a word about this so here we go.
I am in a reasonable position to produce the documentary with no budget
This is because I am capable of video editing and a wide range of graphical work and because of the way I want the documentary’s content to be collected.
If funding does become an issue at any point in the project I will resort to crowd-funding. But for now I don’t believe this is necessary, so I haven’t started any campaigns of this type.
Thirdly, What is the aim of the project?
The project’s aim is to help people understand what conditions such as ME/CFS do to a person’s life, and what people around them can do to help.
I am choosing to do this in a way that reflects this aim. I am doing this by allowing many people to contribute content (That they film/write) to the project so that the wide range of effects of the condition are covered.
I will also be conducting interviews.
(If you want to contribute please help me work out what people are willing to submit by filling in this form)
I will be starting the content submission process in the next post.
Fourthly, How long is it going to take?
Now because I am a student doing A-Levels and having to deal with my condition, I don’t get much time to work on the project, so the production may take a while. This is another reason why I settled on the way I want content to be submitted.
Thanks for reading!
-Andrew
Thank-you for your interest in the project.
You can keep up to date with the project by:
Following us on Tumblr: http://meandmycfsdocumentary.tumblr.com/
Following us on Twitter: @MeAndMyCFS
Joining our Facebook Group: https://www.facebook.com/groups/me.and.my.cfs/
Joining our Google+ Community:https://plus.google.com/u/1/communities/106383013497006844597
You can also contact us directly at me.and.my.cfs@gmail.com
The above originally appeared here.
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Registered Charity 3104
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