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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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UK Woman Puts Chronic Pain At The Top Of The Agenda
Saturday 21 February 2015
From UK newspaper Your Thurrock:
 Ella Vine and Julia Sorrells-Wilde |
Thurrock woman puts chronic pain at the top of the agenda
THURROCK'S resident Ella Vine, a chronic back pain sufferer and chief executive of FibroAction, a national charity supporting people living with fibromyalgia, an incurable widespread chronic pain condition, took the need to improve diagnosis and care to people living with chronic pain directly to the parliamentarians.
She attended Arthritis and Musculoskeletal Alliance event in Parliament and raised this issue with decision makers.
Ella said: “I suffer from chronic back pain and know many people in Thurrock who, often silently, suffer from chronic pain conditions, such as fibromyalgia. Often the diagnosis of these conditions takes many years and this is unacceptable. When musculoskeletal conditions, such as fibromyalgia, are not correctly and promptly diagnosed, they do not only bring misery to people’s lives, they can cause or deepen a disability, force people out of work, put families in income poverty and prevent people from living their lives to the full. It also costs more public money.
Prevention is the key and that is why we need excellent care and facilities to help people stay as healthy and active as possible through their lifetime. So I took the message from Thurrock to the heart of Parliament that an absolute priority for the incoming government and the NHS should be to offer excellent, top class quality diagnosis and care for people living with any of these conditions”.
Ella met with Julie Sorrell-Wilde, a Corringham’s resident, who told her story: “I was diagnosed with fibromyalgia 15 years ago. I was a very hyperactive person, full of energy, busy mum of two.
“Then I had a traumatic operation and months after this I started to get health problems. Chronic pain, anxiety, depression, muscle spasms, fatigue, headaches and a feeling of having flu every other week. A year later I was referred to a rheumatologist at a local hospital, who diagnosed me with fibromyalgia. I was given the telephone number of a local support group ... and then sent away. No medication. No other offer of support. No second appointment.
“I contacted the support group – and joined – then went back to my GP. He referred me to physiotherapist for my aches and they referred me to hydro therapy. I eat healthily, exercise regularly and keep as active as I can with the pain. My son who is 19 was diagnosed with fibromyalgia too. Some days he can hardly walk and is in intense pain most days.
FM Support South East Essex meet monthly at The Stanford-le-Hope Methodist Church Hall on Thursdays at 7.30pm.
Next meeting is on the 26th Feb – with guest speaker Ella Vine – Chief Executive of FibroAction. £2 non-members, £1 members.
Copyright © 2015 Local World. All Rights Reserved.
The above originally appeared here.
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