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Phoenix Rising

Friday 29 May 2009

Phoenix RisingPhoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

You can subscribe to the newsletter as well as download each issue.

The latest from Cort is the March 2009 edition which focuses on the IACFS/ME Conference and comes in two parts:

The IACFS/ME Conference I: Treatment - Lifestyle Managment, Stress Reduction, CBT and Something New

The IACFS/ME Conference II: Treatment - Physiological Approaches

Here’s Cort’s introduction:

Hi, welcome to the March (yes March) issue of Phoenix Rising on the IACFS/ME Conference in Reno Part I

(Part II of Dr. Friedberg's interview will appear later as I build up some sections of the website that expand on his ideas. The complete interview will be posted after the conference review.

Conference attendance was, not surprisingly, given the economic circumstances down from the Florida conference with several familiar faces missing (and some new ones showing up). While the breadth of the conference was diminished somewhat the researchers there dug deeper into important issues. The repeat exercise studies first showed up at the last conference and researchers have jumped on them quickly in the last two years and we learned more about them. There was one 'shocker', a stirring call for a the field to re-invent itself, and most impressively we got an in-depth look at the work of the Whittemore-Peterson Institute.

The first sections deal with treatment presentations;

Part 1: Lifestyle management, stress reduction, CBT and something new – covered a gamut of issues including Dr. Jason's startling study on the importance of envelope techniques are, why some patients can't benefit from behavioral techniques, several indications that CBT's time is the sun may be fading, and studies on several new techniques.

Part 2: Physiological Approaches – contained several intriguing study's on the efficacy of a (relatively) new sleep medication – Zyrem, the immunomodulator Isoprinosine, an antiviral herb Dr Chia is interested in from China, Dr. Cheney's new protocols and more.

Coming up soon we'll get into the heart of the conference with a close look at a scad of repeat exercise study results, the 'Shocker' of the conference, Dr. Vernon's stirring vision of the ME/CFS research field and a special section on what the Whittemore Peterson Institute is doing.

Cort Johnson

Phoenix Rising – An ME/CFS Website at


Phoenix Rising in the news:

14/09/09: The Conference Edition III
22/07/09: A remarkable story of recovery
29/05/09: March 2009 Edition
17/01/09: December 2008 Edition
15/12/08: The News Edition
17/10/08: The Cortisol Edition
15/09/08: Interview with Dr Ken Friedman Part III
10/09/08: Treating Orthostatic Intolerance
25/08/08: Congressional Briefing etc
15/08/08: The Symposium on Viruses in CFS
06/07/08: Interview with Dr Ken Friedman Part II
18/06/08: Nancy Klimas on the Immune System, Treatment and the Future
24/05/08: Interview with Tom Hennessy
08/05/08: The Advocacy Month Part II
25/04/08: Interview with Dr Ken Friedman
16/04/08: February 2008
26/03/08: Interview with Martha Kilcoyne
12/03/08: January 2008
29/01/08: End of year ‘Story Edition’
22/12/07: 2006 Year in Review
27/11/07: Interview with Dr Suzanne Vernon
02/11/07: Interview with Rik Carlson
15/10/07: The Autonomic Nervous System Edition
25/09/07: The CDC Prevalence Definition Edition
07/07/07: First Advocacy Edition
07/06/07: March/April 2007 issue
21/04/07: Special Edition: Pat Fero interview
10/04/07: January/February 2007 issue
08/03/07: Special Edition: IACFS Conference report, part 2
30/01/07: Special Edition: IACFS Conference
19/01/07: January 2007 edition
05/01/07: The IACFS Conference Edition
14/12/06: Special Edition: Dorothy Wall interview
05/12/06: October 2006 newsletter
25/10/06: September 2006 newsletter
04/10/06: August 2006 newsletter
26/07/06: June 2006 newsletter
16/06/06: May 2006 newsletter
02/06/06: March & April 2006 newsletters
28/03/06: January & February 2006 newsletters
04/02/06: December 2005 newsletter
04/01/06: November 2005 newsletter



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