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ME/CFS Australia Ltd
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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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About ME/CFS South Australia Inc

 

ME/CFS South Australia Inc. has been serving the ME/CFS community in South Australia since 1987, as a registered charity run by volunteers. We provide peer support, education and advocacy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, and related illnesses.  ME/CFS SA does not receive any government funding but relies on memberships, donations, fundraising and  volunteers to continue its work in the community.

 

 Our Vision 

That people with ME/CFS will:

  • receive appropriate diagnosis, treatment, and care
  • receive equitable access to service provision in health, welfare, disability, education and community services
  • experience an improvement in quality of life

 

Can We Make a Difference?

Despite the high prevalence of ME/CFS in the community (up to 240,000 Australians) and the life-changing impact of ME/CFS on both the individual and their families, there is a lack of recognition and understanding. ME/CFS SA is working hard on multiple fronts, at local, state, national and international level, to bring about change.

For example, at the national level, in 2016 ME/CFS SA asked the NHMRC (National Health and Medical Research Council) what we could do to get more research funding for ME/CFS. On their advice, ME/CFS SA submitted a Targeted Call for Research application. Following a year of consultation with NHMRC staff, in 2018 the NHMRC put together an Advisory Committee. A  draft report is now being finalised to advise the NHMRC's Chief Executive Officer about ways the NHMRC might support ME/CFS research and clinical guidance.

 

How can you help?

We would encourage all South Australians with a connection to this condition to join ME/CFS SA – together we can make a difference.

 

We support people with ME/CFS and their carers by:

Providing services:

  • newsletters, e-bulletins, Talking Point magazine, Facebook, and Twitter
  • quarterly seminars
  • recordings of seminars via DVDs/electronic links
  • telephone and email support
  • website
  • monthly social catch-ups
  • special events
  • library

We engage in advocacy efforts including, but not limited to:

  • submissions and public consultations
  • collaboration with other ME/CFS organisations at local, state, national and international level
  • liaison with service providers
  • awareness raising activities and education
  • cooperation with research initiatives

 

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