ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
President’s Annual Report
President’s Annual Report
AGM, November 24, 2001
By Paul Leverenz
I want to start by saying I am very proud of all we have achieved this year despite the continual struggle we face for health and recognition.
As I’ll explain more fully later this Management Committee inherited a very difficult situation. I need to make it clear that the Society almost folded in the last 2 years – for lack of human resources. For the second year in a row we struggled to achieve a quorum at the AGM and had to hold meetings in February. When you have to start asking for nominations from the floor ‘on the day’ you are really struggling – not just numbers wise but, more importantly, in organisational continuity. I think it is important that we, the members, realise this before making assessments of the Management Committee.
There is much positive to report – we have made inroads into several areas, and achieved a lot this year.
In July, we moved to a reasonable sized office and are on the way to setting it up well. We are in the process of setting up systems and structures that will provide long term benefit to the organisation. Our realistic goal is to have it up and running well by Awareness Week 2002.
We have been working on a lot of things which will take fruition next year. A few of us have attended the Chronic Disease Self-Management Program at the Arthritis Foundation. We plan to train leaders (we have already done one person) and trial the course for ourselves next year. (http://www.stanford.edu/group/perc/cdsmp.html)
It is also good to note that Bill Daniels has again been asked to run a WEA course on Chronic Fatigue Syndrome. Whilst this is not an ‘official’ Society event it is good publicity for the condition.
So we have had a productive year, and as I said can be proud of it.
Along the way we’ve had assistance from a few people. I’d like to extend
thankyous: IITAB & SA Training Revelation who donated their old phone
system to us; Electrolux for a discount on a refrigerator; and Bank SA
for a $1000 donation.