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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Our new website is: https://mecfssa.org.au/
The website you are currently visiting remains live as an historical document and is no longer being updated.
It is also accessible from the footer of our new website.
Aims of the Society
Mission Statement
Vision
Aims
Goals
The Society
Members’ pages
Aims of the Society
Mission Statement
Vision
Aims
Goals
Mission Statement
To improve the quality of life and health management of people with ME/Chronic Fatigue Syndrome, whilst supporting community education and research initiatives, which will lead to recognition by government health providers of the need for better outcomes in service provision.
Vision
People diagnosed with ME/CFS condition should be recognized as having a genuine illness and be entitled to equitable service provision. They should be entitled to fair treatment by medical and health professionals, as well as health and government service providers. They should not be discriminated against by health, medical, housing financial or educational bodies because of their diagnosis. One specific feature of ME/CFS as a condition – that it may fluctuate in severity – should be acknowledged.
Aims
- Information
The society aims to provide information to persons with ME/CFS, carers of people with ME/CFS, medical and health practitioners, and the general community to enhance understanding of the condition. It also seeks to raise awareness about research, and actively promotes awareness about living with chronic illness. - Support
The Society seeks to provide positive role models for people with ME/CFS. Using a Model of Recovery the Society seeks to provide and recommend appropriate self-management programs and coping strategies for people with ME/CFS. - Liaison
To liaise with interstate and international ME/CFS organizations, and like minded organizations, in order to keep abreast of the latest information, research initiatives and medical developments. - Advocacy
Responding to current developments in policy relating to ME/CFS. The society will continue to keep abreast of these developments and encourage membership to participate in opportunities for comment.
The Society seeks to keep health, medical, housing, financial and educational bodies up to date on the latest information about ME/CFS, with a view to ensuring people with ME/CFS are not discriminated against. - Cooperation with other agencies
A cooperative service model is adopted in order to increase its range of services to members, as well as broadening its membership base. - Youth
The Society recognizes there are unique and specific needs amongst youth with ME/CFS. Since 1994 we have supported and encouraged SAYME (South Australian Youth with ME/CFS). The Society seeks to address the social isolation experienced by young people with ME/CFS, as well as their socialization and educational needs. [see separate Youth section]
Goals
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To maintain and build upon the current services offered by the organization |
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To increase funding activities to meet increased operating costs |
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To prioritize the processes for gathering of data to apply for grants |
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To keep up to date with medical, policy and research initiatives |
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To explore programs which may assist members to maintain their well-being and to reduce social isolation |
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To continue to provide responsive, stable and appropriate management |
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To encourage members to become actively involved in the activities of the organization |
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To educate every GP in the state about ME/CFS |
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Registered Charity 3104