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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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In the News

2020

 

February

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 17 February 2020: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Donate To SAHMRI
Monday 17 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Participants Needed For Online Survey
Monday 17 February 2020: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

The Brave Mum Who Lives With Chronic Pain And Is Told Her Illness Isn't Real
Sunday 16 February 2020: A profile of UK Fibromyalgia sufferer Heather Martin-Goff.

Donate To SAHMRI
Sunday 16 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 16 February 2020: A petition from Jake Bailey on Change.org.

Petition: #NotEnoughForME
Saturday 15 February 2020: A petition from ME Action.

Donate To SAHMRI
Saturday 15 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Derry Author Claire Allan: Fibromyalgia Won't Stop Me Achieving My Dreams
Friday 14 February 2020: A profile of Irish author and Fibromyalgia sufferer Claire Allan.

Donate To SAHMRI
Friday 14 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Chronic Illness Manifesto Survey
Friday 14 February 2020: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Fight Fatigue And Fibromyalgia Event Comes To Limerick This February
Thursday 13 February 2020: A group of Irish healthcare professionals have rallied together to create an awareness event for Fibromyalgia.

Donate To SAHMRI
Thursday 13 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Fibromyalgia Study Seeking Participants To Complete An Online Survey
Thursday 13 February 2020: Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives.

'The Victimisation Was Horrible': Why Are So Many Disabled Lawyers Treated Badly?
Wednesday 12 February 2020: A new study says that more than half of disabled lawyers have experienced bullying or discrimination at work.

Donate To SAHMRI
Wednesday 12 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Rock Off Fibro CD Released At HMV Stores As Deeside Couple Continue Their Fight Against Fibromyalgia
Tuesday 11 February 2020: A profile of UK musician David Williams who has created Rock Off Fibro, a CD that aims to raise awareness for Fibromyalgia.

Donate To SAHMRI
Tuesday 11 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 11 February 2020: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 10 February 2020: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Donate To SAHMRI
Monday 10 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

I'm Struggling To Cope, Says Yorkshire Coast Woman With Chronic Fibromyalgia Who Has Had PIPs Benefits Stopped
Monday 10 February 2020: A profile of UK Fibromyalgia sufferer Sophie Steward.

Participants Needed For Online Survey
Monday 10 February 2020: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Local Focus: The Heart-Breaking Experiences Of Mothers With ME
Sunday 9 February 2020: A profile of New Zealand ME/CFS sufferer Holly Rinii.

Donate To SAHMRI
Sunday 9 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

CRIPPLING PAIN Former Page 3 Beauty Jo Guest Reveals Her Devastating Battle With Fibromyalgia That Left Her Too Exhausted For Sex
Sunday 9 February 2020: A profile of UK Fibromyalgia sufferer Jo Guest.

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 9 February 2020: A petition from Jake Bailey on Change.org.

Petition: #NotEnoughForME
Saturday 8 February 2020: A petition from ME Action.

Donate To SAHMRI
Saturday 8 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Debut Book From York ME Sufferer, Pippa Stacey
Friday 7 February 2020: A profile of UK ME/CFS sufferer Pippa Stacey, who has released a non-fiction book titled University and Chronic Illness: A Survival Guide.

Donate To SAHMRI
Friday 7 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Chronic Illness Manifesto Survey
Friday 7 February 2020: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

The Robots Helping Sick Children Go To School
Thursday 6 February 2020: Dozens of schools and colleges across Somerset in the UK are using robots to help sick children continue to experience classroom learning.

Donate To SAHMRI
Thursday 6 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Fibromyalgia Study Seeking Participants To Complete An Online Survey
Thursday 6 February 2020: Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives.

DePaul University Researchers Unmask Misunderstood Chronic Illness
Wednesday 5 February 2020: A profile of ME/CFS researchers at DePaul University in the US.

Donate To SAHMRI
Wednesday 5 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 4 February 2020: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Donate To SAHMRI
Tuesday 4 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 3 February 2020: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Donate To SAHMRI
Monday 3 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Participants Needed For Online Survey
Monday 3 February 2020: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

UK Woman In Wheelchair Stripped Of Disability Benefits Because She Can Walk Four Steps In Assessment
Sunday 2 February 2020: A profile of UK ME/CFS sufferer Michelle Wyatt.

Donate To SAHMRI
Sunday 2 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Low-Dose Naltrexone May Help Some Cases Of Chronic Fatigue Syndrome, Suggests Study
Sunday 2 February 2020: A recent case series published in BMJ Case Reports describes the use of low-dose naltrexone (LDN) for the treatment of Chronic Fatigue Syndrome.

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 2 February 2020: A petition from Jake Bailey on Change.org.

A Snapshot Of Living With Environmental Sensitivities In Australia In 2019
Saturday 1 February 2020: A document from the Australian National Register of Environmental Sensitivities.

Donate To SAHMRI
Saturday 1 February 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Peterborough Woman Writes Book On Learning To Live With Chronic Illness
Saturday 1 February 2020: A profile of US author and chronic illness sufferer Cam Auxer.

Petition: #NotEnoughForME
Saturday 1 February 2020: A petition from ME Action.
January

Chronic Illness Manifesto Survey
Friday 31 January 2020: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Donate To SAHMRI
Friday 31 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Nerve Stimulation May Offer Relief For Fibromyalgia Sufferers
Thursday 30 January 2020: A new study suggests that transcutaneous electrical nerve stimulation (TENS) during physical activity can significantly reduce Fibromyalgia associated pain.

Donate To SAHMRI
Thursday 30 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Many Youth Living With Undiagnosed Chronic Fatigue Syndrome
Thursday 30 January 2020: Most youth living with ME/CFS have not been diagnosed, according to a new prevalence study in the US.

Fibromyalgia Study Seeking Participants To Complete An Online Survey
Thursday 30 January 2020: Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives.

Learning To Manage Our Chronic Illness: ME/Chronic Fatigue Syndrome
Wednesday 29 January 2020: A profile of two Irish ME/CFS sufferers.

Donate To SAHMRI
Wednesday 29 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

'The Way Of The Tired Person': Life Rules For The Perpetually Exhausted
Tuesday 28 January 2020: An article by ME/CFS sufferer Jo Walker.

Donate To SAHMRI
Tuesday 28 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 28 January 2020: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

I'm Not 'Lucky' To Be On Disability Benefits Due To Fibromyalgia
Monday 27 January 2020: An article by Fibromyalgia sufferer Angelique Gilchrist.

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 27 January 2020: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Donate To SAHMRI
Monday 27 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Participants Needed For Online Survey
Monday 27 January 2020: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Enliven Bed And Breakfast Successfully Caters To Chemically Sensitive Travelers
Sunday 26 January 2020: US Lyme Disease sufferer Teresa Molitor Luttrell has created a bed and breakfast for people with chemical sensitivities.

Donate To SAHMRI
Sunday 26 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 26 January 2020: A petition from Jake Bailey on Change.org.

Petition: #NotEnoughForME
Saturday 25 January 2020: A petition from ME Action.

Donate To SAHMRI
Saturday 25 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

The Prevalence Of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome In A Community-Based Sample
Friday 24 January 2020: Research published in the journal Child & Youth Care Forum.

Donate To SAHMRI
Friday 24 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Chronic Illness Manifesto Survey
Friday 24 January 2020: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

How Two Women Found The Energy To Fight Back After Losing Years Of Their Lives To Chronic Fatigue
Thursday 23 January 2020: A profile of UK ME/CFS sufferer Kate Stanforth.

Donate To SAHMRI
Thursday 23 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Fibromyalgia Study Seeking Participants To Complete An Online Survey
Thursday 23 January 2020: Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives.

Disabled Woman Left Without Home Help Over Christmas Break
Wednesday 22 January 2020: A profile of New Zealand PTSD, Fibromyalgia and chronic migraine sufferer Careen Busing.

Donate To SAHMRI
Wednesday 22 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

How Singing In A Choir Helps My Chronic Pain
Tuesday 21 January 2020: An article by ME/CFS/Fibromyalgia sufferer Kira McCarthy.

Donate To SAHMRI
Tuesday 21 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 21 January 2020: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Comprehensive Circulatory Metabolomics In ME/CFS Reveals Disrupted Metabolism Of Acyl Lipids And Steroids
Monday 20 January 2020: Medical research published in the journal Metabolites.

Donate To SAHMRI
Monday 20 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 20 January 2020: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Participants Needed For Online Survey
Monday 20 January 2020: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Donate To SAHMRI
Sunday 19 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

CDMRP Funding Announcement Comes Just 24 Days After Congress Opens Potential $350 Million To ME/CFS Researchers
Sunday 19 January 2020: News from US organisation Solve ME/CFS.

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 19 January 2020: A petition from Jake Bailey on Change.org.

Donate To SAHMRI
Saturday 18 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Petition: #NotEnoughForME
Saturday 18 January 2020: A petition from ME Action.

Donate To SAHMRI
Friday 17 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

NIH Funds Chicago-Based Study Of Chronic Fatigue Syndrome And Mono In College Age Students
Friday 17 January 2020: DePaul University and Lurie Children's Hospital lead research to uncover underlying mechanisms of disease by examining connections with infectious mononucleosis.

Chronic Illness Manifesto Survey
Friday 17 January 2020: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Donate To SAHMRI
Thursday 16 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

'It's Been A Grieving Process' - Northumberland Woman Determined Not To Let Condition Ruin Her Life
Thursday 16 January 2020: A profile of UK ME/CFS sufferer Kate Stanforth.

Fibromyalgia Study Seeking Participants To Complete An Online Survey
Thursday 16 January 2020: Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives.

Donate To SAHMRI
Wednesday 15 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

6 Breastfeeding Positions For Moms With Chronic Pain
Wednesday 15 January 2020: An article by Kinsey Gidick.

My Pro-Tips For Planning My Days And Managing The Unexpected With Fibromyalgia
Wednesday 15 January 2020: An article by Fibromyalgia sufferer Kelly Lahy.

Donate To SAHMRI
Tuesday 14 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 14 January 2020: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
Tuesday 14 January 2020: The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'.

Donate To SAHMRI
Monday 13 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

The Hollow Man
Monday 13 January 2020: A profile of Australian ME/CFS sufferer Tony Wallace.

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 13 January 2020: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Participants Needed For Online Survey
Monday 13 January 2020: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Donate To SAHMRI
Sunday 12 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 12 January 2020: A petition from Jake Bailey on Change.org.

Donate To SAHMRI
Saturday 11 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Study Seeks Clues To Chronic Fatigue Syndrome
Saturday 11 January 2020: A video of research being conducted at the US National Institutes of Health.

Bodybuilder Faces The Toughest Battle Of His Life – ME/CFS
Saturday 11 January 2020: A profile of US ME/CFS sufferer Jamison Hill.

Petition: #NotEnoughForME
Saturday 11 January 2020: A petition from ME Action.

Donate To SAHMRI
Friday 10 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Justin Bieber: Singer Reveals He Has Lyme Disease
Friday 10 January 2020: Canadian pop singer Justin Bieber has revealed he has been diagnosed with Lyme Disease.

Patients Push Limits For Clues To Chronic Fatigue Syndrome
Friday 10 January 2020: Doctors at the US National Institutes of Health are using volunteers with ME/CFS for a unique study that pushes their limits in search of what's stealing all their energy.

Chronic Illness Manifesto Survey
Friday 10 January 2020: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Donate To SAHMRI
Thursday 9 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Fibromyalgia Study Seeking Participants To Complete An Online Survey
Thursday 9 January 2020: Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives.

Donate To SAHMRI
Wednesday 8 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Girl In A Wheelchair - Mystery-Thriller Discovers Disability And Illness
Wednesday 8 January 2020: A review of Girl in a Wheelchair, a book in which the main character sufferers from ME/CFS and Fibromyalgia.

Donate To SAHMRI
Tuesday 7 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Chronic Fatigue Syndrome Sufferer Considered Euthanasia After Lack Of Help From NHS
Tuesday 7 January 2020: A profile of Scottish ME/CFS sufferer Eileen Munro.

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 7 January 2020: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
Tuesday 7 January 2020: The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'.

Donate To SAHMRI
Monday 6 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 6 January 2020: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Participants Needed For Online Survey
Monday 6 January 2020: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Donate To SAHMRI
Sunday 5 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 5 January 2020: A petition from Jake Bailey on Change.org.

Donate To SAHMRI
Saturday 4 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Huge Rise In Fibromyalgia In Grimsby Area And Nobody Knows What Causes It
Saturday 4 January 2020: The number of people in the North East Lincolnshire suffering from Fibromyalgia - a condition causing unexplained widespread pain - has soared in recent years, new NHS figures suggest.

Celebrity Jewellery Designer Who Ditched Diamonds To Become A Vegetable Gardener
Saturday 4 January 2020: A profile of UK ME/CFS sufferer Lucy Start.

Petition: #NotEnoughForME
Saturday 4 January 2020: A petition from ME Action.

Donate To SAHMRI
Friday 3 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Disabled Ballet Dancer Wins National Award For Groundbreaking Organisation
Friday 3 January 2020: The UK's North East Dance Co-operative, founded by Angeline Lucas, has won the prestigious One Dance UK Award for Innovation in Dance, particularly for the work they have done in 2019.

Chronic Illness Manifesto Survey
Friday 3 January 2020: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Donate To SAHMRI
Thursday 2 January 2020: A request for donations to the South Australian Health & Medical Research Institute (SAHMRI).

Fibromyalgia Study Seeking Participants To Complete An Online Survey
Thursday 2 January 2020: Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives.

Happy New Year
Wednesday 1 January 2020: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.

 


 

In the News – 2019

In the News – 2018

In the News – 2017

In the News – 2016

In the News – 2015

In the News – 2014

In the News – 2013

In the News – 2012

In the News – 2011

In the News – 2010

In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

 


 

 

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