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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Closed while relocating

Phone:
1300 128 339

Office Hours:
Wednesdays, 10am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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In the News

2017

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Fibromyalgia news

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Multiple Chemical Sensitivity news

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Multimedia
 
February

List Of Medical Marijuana Use May Expand In New Jersey
Tuesday 28 February 2017: A video from US (New Jersey) TV program SNJ Today.

Participants Needed For Online Survey
Tuesday 28 February 2017: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Plaudits For New South African TV News Documentary On ME/CFS
Monday 27 February 2017: A video from South African current affairs TV program Carte Blanche.

When It's An Effort To Just Get Out Of Bed
Monday 27 February 2017: A profile of Irish Fibromyalgia sufferer Catherine Keaney.

Neural Consequences Of Post-Exertion Malaise In ME/CFS
Sunday 26 February 2017: Research published in Brain, Behavior, and Immunity.

Stanford Team Announces Update On ME/CFS Research
Saturday 25 February 2017: A research team at Stanford University has given an update on some of the breakthroughs its team has made in understanding the metabolic cycles that are not working properly in people with ME/CFS that might be at the heart of the disease.

UniSA Gaming Study Recruitment
Saturday 25 February 2017: South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'.

Four New Ailments Being Added To Connecticut Medical Marijuana Program
Friday 24 February 2017: Proposals to add fibromyalgia, muscular dystrophy, shingles and rheumatoid arthritis to the list of painful ailments that qualify for Connecticut's medical marijuana program were recently endorsed by a state agency.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 24 February 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

One Of The Biggest Myths About Chronic Fatigue Syndrome Just Got Debunked
Thursday 23 February 2017: Australian researchers have shown for the first time that CFS is linked to a faulty cell receptor in immune cells.

Death Eater From Harry Potter Films Moves To Eastbourne
Thursday 23 February 2017: A profile of British actor Jon Campling, whose wife, Ali, has ME/CFS.

Gold Coast Researchers Make Chronic Fatigue Syndrome Breakthrough
Wednesday 22 February 2017: In a world first, Gold Coast researchers have made an important breakthrough in understanding the cause of Chronic Fatigue Syndrome.

Halstead Resident Bids To Start Support Group After Feeling 'Alone' During Battle With Fibromyalgia
Tuesday 21 February 2017: A UK woman with Fibromyalgia is hoping to kick-start a support group after feeling "alone" during her battle with the disease.

Participants Needed For Online Survey
Tuesday 21 February 2017: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Relief At Last? The Next Generation Of Opioid Drugs, Fibromyalgia And Chronic Pain
Monday 20 February 2017: An article by Cort Johnson of Health Rising.

Ampligen Petition
Sunday 19 February 2017: A petition from UK organisation ME Action.

The Invisible Disease: Fibromyalgia Sufferers Speak Out
Saturday 18 February 2017: A profile of West Australian Fibromyalgia sufferer Michelle Greenwood.

UniSA Gaming Study Recruitment
Saturday 18 February 2017: South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'.

Student Seeking Feedback From ME/CFS Patients
Friday 17 February 2017: Brooke Denmark, a US student working on her Masters in Social Work, is asking ME/CFS sufferers to fill in a questionnaire about life with the disease.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 17 February 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Thousands Could Have Lyme Disease Without Knowing
Thursday 16 February 2017: A UK campaign to raise awareness of Lyme disease has found that thousands of people could be living with the condition, having been diagnosed with something else.

Gross And Fine Motor Function In Fibromyalgia And Chronic Fatigue Syndrome
Wednesday 15 February 2017: A research paper published in Dove Medical Press.

Metabolic Switch May Bring On Chronic Fatigue Syndrome
Tuesday 14 February 2017: Evidence is mounting that Chronic Fatigue Syndrome is caused by the body swapping to less efficient ways of generating energy.

Participants Needed For Online Survey
Tuesday 14 February 2017: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Some 270 Norwegian Students Drop School For Chronic Fatigue Syndrome
Monday 13 February 2017: In the last academic year, there were about 270 primary and secondary students in Norway who did not participate in education due to ME/CFS.

People Say 'Oh, I Think I Had That Last Week' – Lisa Battles Illness And Stigma
Sunday 12 February 2017: A profile of UK ME/CFS sufferer Lisa Whight and her support group Chronic Fatiguers Unite.

UniSA Gaming Study Recruitment
Saturday 11 February 2017: South Australian volunteers are asked to participate in a study entitled 'Pacing to increase physical activity for adults with ME/CFS: Are active video games a feasible and acceptable strategy?'.

Medicinal Cannabis Still Too Costly For Christchurch Woman
Friday 10 February 2017: The high cost of medicinal cannabis means the drug will remain out of reach for a New Zealand woman with Fibromyalgia, despite the Government making it more accessible.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 10 February 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Illness With Pain 'Like Being Hit By A Bus' Forces Cafe Owner To Leave Business Behind
Thursday 9 February 2017: A profile of UK Fibromyalgia sufferer Joanne Cartwright.

AM Tells Fibromyalgia To Rock Off In A Bid To Raise Funds For Treatment
Thursday 9 February 2017: A caring husband in the UK is saying "rock off" to Fibromyalgia in a bid to raise funds for treatment for all local sufferers.

How To Be Disabled, According To Stock Photography
Wednesday 8 February 2017: An article about what the photo service Shutterstock considers "disabled" to be.

Interview With Jennifer Brea
Tuesday 7 February 2017: Filmmaker and ME/CFS sufferer Jennifer Brea talks about her new documentary, Unrest.

Participants Needed For Online Survey
Tuesday 7 February 2017: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Interview With Ron Davis
Monday 6 February 2017: Scientific Advisory Board Director Ronald Davis, PhD, answers questions on new technology and strategies for "fast-tracking" ME/CFS research.

Chronic Fatigue Syndrome (ME/CFS) Even Worse In Japan Than US
Monday 6 February 2017: An analysis of an article entitled "Ministry of Health Survey Reveals Harsh Reality of ME/CFS Patients in Japan" by Japan ME Association president Mieko Shinohara.

How Gut Bacteria Is Helping To Unpack Chronic Fatigue Syndrome
Sunday 5 February 2017: Researchers at Melbourne University have been studying the metabolites (AKA products of metabolism) and gut microbiota in the faeces, blood and urine of those with ME/CFS.

Scottish Drummer Hit By Crippling Pain To Share Story Of Recovery To Help Others Battling Conditions
Saturday 4 February 2017: A profile of Scottish drummer Mairi Newberry.

NikkiJo Tyrrell's Life Has Been 'On Hold' Since She Got Lyme Disease And ME/CFS
Friday 3 February 2017: A profile of New Zealand Lyme Disease and ME/CFS sufferer NikkiJo Tyrrell.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 3 February 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Unrest Documentary To Air On US TV
Thursday 2 February 2017: The PBS network has acquired US broadcast rights to the ME/CFS documentary film Unrest for its Emmy Award-winning series Independent Lens.

Raising Awareness Of Fibromyalgia
Thursday 2 February 2017: UK motor sport driver Adam Higgins is trying to raise funds to increase awareness of Fibromyalgia.

I'm Not Faking Being Sick; I'm Actually Faking Being Well
Wednesday 1 February 2017: An article by Fibromyalgia sufferer Robin Dix.
January

Participants Needed For Online Survey
Tuesday 31 January 2017: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

Society Seminars For 2017
Tuesday 31 January 2017: Dates for the ME/CFS Australia (SA) Inc 2017 seminars.

How Great Human Beings Find Their Purpose
Monday 30 January 2017: A profile of US ME/CFS sufferer and documentary filmmaker Jennifer Brea.

Jen Brea's Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk
Monday 30 January 2017: An article by Health Rising's Cort Johnson about US ME/CFS sufferer Jennifer Brea's recent TED Talk.

Prevalence Of Fibromyalgia Increases With Age, Linked To Poor Quality Of Life, Study Says
Sunday 29 January 2017: The prevalence of Fibromyalgia may increase with age, according to results obtained in a study with Turkish patients.

Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Summary
Saturday 28 January 2017: An update from Solve CFS Initiative president Carol Head.

Controversial GP Receives Australia Gong
Friday 27 January 2017: A controversial Sydney GP who treats patients who "fall through the cracks of old paradigms of medicine" has been granted a Medal of the Order of Australia.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 27 January 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Wearables - Hope For Chronic Fatigue Syndrome And Fibromyalgia?
Thursday 26 January 2017: Health Rising's Cort Johnson discusses the potential of wearable technology for use in ME/CFS and Fibromyalgia.

Unrest Movie Reviews
Wednesday 25 January 2017: Two reviews of the feature-length documentary Unrest, a film by Jennifer Brea about ME/CFS.

Australian Netballer Returns To The Game After ME/CFS
Tuesday 24 January 2017: A profile of Australian netballer Kate Yensch.

Brookin Johnson, 30, Defies The Odds After Nearly Dying Three Times
Monday 23 January 2017: A profile of UK Fibromyalgia sufferer Brookin Johnson.

Professional Tennis Player Mona Barthel Suffered From ME/CFS In 2016
Sunday 22 January 2017: German tennis player Mona Barthel was unable to play throughout 2016 due to Chronic Fatigue Syndrome.

Fibromyalgia Patient Outcomes Can Be Improved, 2-Year Prospective Study Reveals
Saturday 21 January 2017: A two-year study that assessed clinician and patient-reported outcomes among Fibromyalgia patients reveals this patient population can experience certain health improvements.

A Psychosomatic Diagnosis Is A Doctor's Way Of Saying, "I Don't Have A Clue"
Friday 20 January 2017: An article by ME/CFS sufferer Jamison Hill.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 20 January 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Heartbreaking Letter From A UK Woman With Fibromyalgia
Thursday 19 January 2017: UK Fibromyalgia sufferer Peyton Connor has penned a letter to those closest to her.

Jennifer Brea's TED Talk
Wednesday 18 January 2017: A talk that US ME/CFS sufferer Jennifer Brea gave at last summer's TED Summit has just gone live on TED.com.

Possible Mechanism Identified For Chronic Fatigue Syndrome
Tuesday 17 January 2017: Protesters crashed Canadian health minister Jane Philpott's meet-and-greet event in Markham on Saturday 14 January.

ME/CFS Protester Interrupts Canadian Health Minister's Event
Monday 16 January 2017: Protesters crashed Canadian health minister Jane Philpott's meet-and-greet event in Markham on Saturday 14 January.

Differing Case Definitions Point To The Need For An Accurate Diagnosis Of ME/CFS
Sunday 15 January 2017: A research article published in the medical journal Fatigue: Biomedicine, Health & Behaviour.

Panel Recommends Medical Pot For Four More Diseases
Saturday 14 January 2017: A US panel has recommended that people in Connecticut suffering from Muscular Dystrophy, Rheumatoid Arthritis, the pain of Fibromyalgia and shingles should be allowed to join that state's medical marijuana program.

'I Went From Being A Salsa Dancer To Someone Who Couldn't Put On My Own Socks'
Friday 13 January 2017: An article by Irish Fibromyalgia sufferer Deirdre Ryan about her experience with the disease.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 13 January 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Cognitive Dysfunction In Chronic Fatigue Syndrome, Molecular Pattern Discovered
Thursday 12 January 2017: A molecular pattern has been discovered with regards to cognitive dysfunction in chronic fatigue syndrome, giving hope for improved diagnosis and treatment.

Chronic Fatigue Syndrome A Kick In The Guts
Wednesday 11 January 2017: An article about recent studies that associate metabolites and microbiota in faeces, blood and urine with ME/CFS.

A Year In Review: 2016's Top Fibromyalgia Stories
Tuesday 10 January 2017: An article by Donna Gregory Burch about developments in Fibromyalgia research in 2016.

Fuel Shortage: Norwegian Study Expands On Energy Problem In Chronic Fatigue Syndrome (ME/CFS)
Monday 9 January 2017: An article about the work of Norwegian ME/CFS researchers Dr. Øystein Fluge and Professor Olav Mella.

How Alem Matthees' Letter Helped Solve Chronic Fatigue Syndrome Mystery
Sunday 8 January 2017: An article about the determination of Australian ME/CFS sufferer Alem Mathees to discover the truth of the PACE trial data.

Happy Birthday? Another Year With Fibromyalgia
Saturday 7 January 2017: An article by Fibromyalgia sufferer Lori Galpeer.

Study: Grey Matter Abnormalities Associated With Fibromyalgia
Friday 6 January 2017: A research article entitled "Gray matter abnormalities associated with fibromyalgia: A meta-analysis of voxel-based morphometric studies."

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 6 January 2017: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

It's Time For Doctors To Apologise To Their ME Patients
Thursday 5 January 2017: An article by UK ME/CFS specialist Dr Charles Shepherd.

1 Million Americans Suffer With Chronic Fatigue Syndrome
Wednesday 4 January 2017: A video from US TV station KRISTV.com about Chronic Fatigue Syndrome.

What You Should – And Should Not – Say To Someone With Fibromyalgia
Tuesday 3 January 2017: An article by US Fibromyalgia sufferer Robin Dix.

Arthritis Society Of Canada Funds Medical Marijuana Research For Fibromyalgia Pain
Monday 2 January 2017: The Arthritis Society of Canada is awarding a three-year research grant to Dr. Mark Ware to study the use of medical marijuana (cannabis) for Fibromyalgia pain.

Happy New Year
Sunday 1 January 2017: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.


In the News – 2016

In the News – 2015

In the News – 2014

In the News – 2013

In the News – 2012

In the News – 2011

In the News – 2010

In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

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