| May |
• |
Call goes out for research on ME
Nikita Watson had just turned three when she stopped being active and was tired and plagued with body pains. |
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ME/CFS appears to be a disease affecting the basal banglia and dopamine metabolism
A new study led by CDC investigator Elizabeth Unger, MD, PhD, with collaborators at Emory University, Atlanta, and the University of Modena and Reggio Emilia, Italy, has identified unique responses in the brain's basal ganglia that suggest an association between a biologic functional response and chronic fatigue syndrome. |
• |
Oxidative stress linked to headache in Fibromyalgia; CoQ10 supports important improvement
An article from PLoS One entitled "Oxidative Stress Correlates with Headache Symptoms in Fibromyalgia: Coenzyme Q10 Effect on Clinical Improvement". |
• |
State of Washington MCS Proclamation
The State of Washington has issued a Proclamation for Multiple Chemical Sensitivity Awareness Month. |
• |
Study explores role of impaired sleep in Fibromyalgia pain
Patients coping with fibromyalgia often have difficulty sleeping, and a new study published in The Journal of Pain reports that despite the negative quality of life implications, poor sleep is not a significant predictor of fibromyalgia pain intensity and duration. |
• |
North Carolina MCS Proclamation
Beverly Eaves Perdue, Governor of the State of North Carolina, has issued a Proclamation for Multiple Chemical Sensitivity Awareness Month. |
• |
Oxidative stress correlates with headache symptoms in Fibromyalgia: Coenzyme Q10 effect on clinical improvement
Research published in PLoS One. |
• |
Cuyahoga County, Ohio MCS Proclamation
Cuyahoga County, Ohio has issued a Proclamation for Multiple Chemical Sensitivity Awareness Month. |
• |
Pregabalin (Lyrica) may support meaningful improvement in Fibromyalgia sleep maintenance
An article published in Arthritis Care & Research entitled "Effect of pregabalin on sleep in patients with fibromyalgia and sleep maintenance disturbance: A randomized, placebo-controlled, 2-way crossover polysomnography study". |
• |
Pfizer halts late-stage Lyrica study
Pfizer halted a late-stage study of its second-best selling drug, Lyrica, as a possible treatment for a nerve pain in HIV patients. |
• |
Perceptions of painful stimuli are not 'exaggerated' in Fibromyalgia patients
A research paper entitled "Behavioral and neuronal investigations of hypervigilance in patients with fibromyalgia syndrome". |
• |
Sub-typing daily fatigue progression in CFS
A report published in the Journal of Mental Health. |
• |
Living with Chronic Fatigue Syndrome
Interviews on Australian radio station 612 ABC Brisbane. |
• |
Living with Chronic Fatigue Syndrome
Interviews on Australian radio station 612 ABC Brisbane. |
• |
Multiple Chemical Sensitivity – Deborah's story
A profile of MCS sufferer Deborah. |
• |
Constant suffering for Urris mother
An Irish woman living with chronic pain has revealed she is forced to make an agonising journey to Dublin for regular treatment. |
• |
Fatigue supplements are actually misbranded drugs: FDA
A commercial website for people suffering from symptoms of Chronic Fatigue Syndrome and Fibromyalgia is rife with numerous illegal and misleading treatment claims, according to a recent warning letter sent to Dr. Jacob Teitelbaum by the U.S. Food and Drug Administration. |
• |
Fiona Ross battles illness to reach for the stars
A profile of Fibromyalgia sufferer Fiona Ross. |
• |
Chronic Pain and Fatigue Trust launches in New Zealand
An article about a new charitable trust that will be launched in New Zealand. |
• |
Leeds man wins marathon fight to keep benefits
A former company director who has suffered from a debilitating chronic fatigue condition for two decades has won a year-long benefits battle. |
• |
55% of rheumatologists in Ontario think Fibromyalgia is psychosomatic
An article from Clinical Rheumatology entitled "Should rheumatologists retain ownership of fibromyalgia? A survey of Ontario [Canada] rheumatologists". |
• |
'I was forced to take stock of my life' - bestselling author speaks to the SNJ
A profile of UK actress and author Sophie Neville. |
• |
Runner leaves medical hindrances in the dust
With a 10-kilometre marathon under her belt, a local runner has no plans to let an inhibiting medical condition slow her down. |
• |
Society seminar presentation by dietitian Mel Reid
A presentation by guest speaker, dietitian Melanie Reid, from the Society's recent seminar. |
• |
Massachusetts MCS Proclamation
A Proclamation by the Governor of Massachusetts recognising Multiple Chemical Sensitivity. |
• |
Linley Frame: Olympian and Chronic Fatigue Syndrome sufferer
Linley Frame talks to Lindy Burns ahead of International ME/CFS Week. |
• |
Another pathogen for CFS: Giardia outbreak causes CFS 'outbreak' in Norway
A new study reports at least 5% of patients with CFS nearly 3 years after an acute Giardia enteritis infection, providing evidence of yet another infectious agent that can trigger CFS along with Epstein-Barr Virus, Viral meningitis and the bacterium Coxiella burnetii, amongst others. |
• |
Chronic Fatigue Syndrome: real, weird, and mysterious as ever
A new study find some biological differences in the brains of people suffering from chronic fatigue syndrome, but little that can explain the problem. |
• |
Low brain activity seen in Chronic Fatigue Syndrome
Patients with Chronic Fatigue Syndrome had significantly less activation of the basal ganglia in response to a known stimulus compared with a control group, investigators reported. |
• |
Champion swimmer fights for understanding of 'the most misunderstood' disease
A discussion about the criteria for defining Chronic Fatigue Syndrome. |
• |
Pet lover turns her hobby into a business
An animal lover who has overcome a debilitating muscular condition to set up her own business is encouraging others in a similar position to do the same. |
• |
To PEM or not to PEM? That is the question for case definition
A discussion about the criteria for defining Chronic Fatigue Syndrome. |
• |
'Family forced out' by Trecwn power plant
A father with Multiple Chemical Sensitivity says he and his family will be forced from their home by the creation of a diesel-fired power plant nearby. |
• |
MCS Awareness Month
May is Multiple Chemical Sensitivity Awareness Month worldwide. |
| April |
• |
ME/CFS Awareness Week 2012 Seminar
ME/CFS Australia (Vic, Tas, NT) invite you to attend our annual Awareness Week Seminar. |
• |
Patients' fears at changes to Leeds CFS clinic
Cash-strapped health bosses in Leeds plan to make around £46,000 worth of savings by changing the treatments offered at its specialist CFS clinic at Seacroft Hospital, and patients have criticised the planned shake-up. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
An alarm system gone awry: Pain in Fibromyalgia and CFS
Pain is helpful in many ways, but when your body starts processing it abnormally, as in fibromyalgia and some cases of chronic fatigue syndrome, pain ceases to be helpful and starts doing harm. |
• |
CFS: one disease and its costs
An article about CFS from the White House Chronicle's Llewellyn King. |
• |
Society seminar reminder
A reminder that the Society's first seminar for 2012 will be held next tomorrow (Saturday 28 April). |
• |
Experts meet on pain treatment advances
A conference on medical treatment of pain will be told some treatment advances are not being adequately relayed to clinicians. |
• |
New drug formulation for Fibromyalgia moves forward
An old drug in a new form is moving forward through trials, and the manufacturer hopes it will eventually be approved for treating Fibromyalgia. |
• |
Yes, they are really trying: CFS patients fail cognitive test and pass the effort test
Research from the Pacific Fatigue Labs. |
• |
Couple works to remove stigma and isolation associated with Fibromyalgia
John and Sandra Obenchain openly discuss a very personal struggle to help the millions living with the mental, physical and emotional pain of Fibromyalgia. |
• |
UK woman and friends raise over £2,000 for Fibromyalgia Association
An epic journey along the north Norfolk coast has left a hardy group of fundraisers battered, bruised and blistered - but it has all proved worth it. |
• |
Cognition and CFS: What do we know?
A two-hour webinar on "Cognition & CFS: What Do We Know?", hosted by The CFIDS Association of America, and filmed on April 11, 2012. |
• |
An oasis in a toxic world
A profile of MCS sufferer Jennyfer Sausa and her life in an Arizona desert community that caters specifically to those with MCS. |
• |
Fibromyalgia's effects
A US radio show in which Dr. Gracer interviews Dr. Beth Hodges concerning new surveys that show how severely sufferers of Fibromyalgia are affected and how much the general public knows about this problem. |
• |
US court finds AT&T abused discretion in denying benefits to policyholder with CFS
Legal company Kantor & Kantor, LLP announced a victory in a Californian District Court on behalf of client Judi Peterson, who suffers from Chronic Fatigue Syndrome, against AT&T. |
• |
Radio show: Treating Chronic Fatigue Syndrome
An episode of the Internet radio program Health Matters Show that focuses on CFS. |
• |
Letter to Canadian Minister of Health
An open letter to Ontario's Minister of Health. |
• |
A judge should check the degree of MCS disability
A judge has ruled in favor of one affected by Multiple Chemical Sensitivity and forced the Catalan Institute Assistència i Serveis Socials (ICASS) to review their degree of disability. |
• |
Using public transport is 'stressful' for the disabled
The UK's Worcester News reports that a disabled man from Evesham has called for better access on public transport for wheelchair users. |
• |
Llewellyn won't snooze through tiresome disease
White House Chronicle host Llewellyn King has a fierce new interest: He has become a voice for people who suffer from an incurable disease, myalgic encephalomyelitis, also known as Chronic Fatigue Syndrome. |
• |
AD calls for inclusion of ME and FM in list of chronic conditions
Maltese political party Alternattiva Demokratika calls for the inclusion of ME (Myalgic Encephalopathy) and FM (Fibromyalgia) in schedule which guarantees entitlement for free medicines. |
• |
Pregabalin lets Fibromyalgia patients sleep
Sleep difficulties commonly experienced by patients with fibromyalgia were greatly improved during 4 weeks of treatment with pregabalin (Lyrica), a randomized trial found. |
• |
Don't worry Jessica, we got it on film!
A teenage girl with chronic fatigue syndrome will get to see her friend perform after all. |
• |
Odds of TMJ disorder in Fibromyalgia may be as high as 1 in 3
Research entitled "Signs and symptoms of temporomandibular dysfunction in fibromyalgic patients" that was published in the Journal of Craniofacial Surgery. |
• |
Summary of research into harm caused by CBT/GET
Tom Kindlon has created a summary of his research into the harm caused by Cognitive Behaviour Therapy and Graded Exercise Therapy. |
• |
People with Fibromyalgia aren't crazy
A profile of Fibromyalgia sufferer Mara Mittelman. |
• |
New research raises question – is CFS an autoimmune disease?
Tina Marie Miller Tidmore and Dr. Kenneth Friedman joined Leslie Carol Botha on US radio program Holy Hormones Honey! to discuss the latest research on ME/CFS. |
• |
Speech in Parliament: Introducing the Disability Services Amendment Bill 2012
A speech made in South Australian Parliament by Kelly Vincent MLC. |
• |
Ampligen for Chronic Fatigue Syndrome: Trial Data Released
A newly released study demonstrated that the drug Ampligen improved exercise tolerance and other symptoms of ME/CFS, and also lead to decreased use of other medications. |
• |
Petition regarding ME/CFS presented to NZ government
A petition regarding ME/CFS was presented to the government in New Zealand. |
• |
ArtSunday: "trapped in our bodies" – coping with CFS through photography
An article by photographer and ME/CFS sufferer Sarah Allegra about how she copes with her disease via her chosen medium, photography. |
• |
ME is often dismissed – but sufferers like Emily Collingridge are dying
An op-ed piece from The Guardian. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
| March |
• |
New surveys reveal striking differences between public perceptions and private realities of people with Fibromyalgia
National US findings suggest better understanding and support may empower people to seek help early for fibromyalgia symptoms. |
• |
Emily Rose Collingridge
An article about severe ME/CFS sufferer Emily Rose Collingridge. |
• |
Michael Crawford talks about ME
A radio interview with English actor Michael Crawford who moved to New Zealand to help recover from ME. |
• |
Tossing out toxins
A University of Arizona professor proposes to ban toxic dry-erase markers from classrooms. |
• |
A look at Chronic Fatigue Syndrome
US TV station KHAS-TV News 5 takes a look at CFS. |
• |
Personality and physiology in Fibromyalgia: a new discovery
New research may resolve a controversy by tying both fibromyalgia AND a personality trait to a physiological root. |
• |
10 recent pain management studies
Here are 10 recent pain management studies published in the past month on topics including opioid use among the elderly, morphine tolerance and fibromyalgia pain relief. |
• |
Adelaide Entertainment Book
Adelaide Entertainment™ Books are available for purchase as a fundraiser for ME/CFS Australia (SA) Inc. |
• |
Riverland meeting reminder
A reminder that the Riverland ME/CFS Support Group's next meeting will be held today (Friday 23 March) at the Riverland Resource Centre, 9-11 Seekamp St, Berri from 1:30pm to 3:30pm. |
• |
Adelaide Support Group meeting
The Adelaide Support Group will be holding its next meeting this Wednesday (28 March 2012). |
• |
Books by Paul Gregory
UK psychologist and ME/CFS sufferer Paul Gregory has published two books. |
• |
Could discovery 'erase' Fibromyalgia pain?
A team of researchers has made an important discovery about how the memory of pain is stored in the brain. |
• |
Trial of Ampligen treatment for severe ME/CFS reports positive results
A study published in PloS One entitled "A double-blind, placebo-controlled, randomized, clinical trial of the TLR-3 agonist Rintatolimod [Ampligen®] in severe cases of Chronic Fatigue Syndrome". |
• |
More weight equals more Fibromyalgia pain
New research now shows that the more severe the obesity, the more severe the fibromyalgia symptoms, and those who have a body mass index of 35 or higher experience the worst symptoms. |
• |
Riverland meeting
The Riverland ME/CFS Support Group's next meeting will be held Friday 23 March at the Riverland Resource Centre. |
• |
Health trust 'among worst offenders' over lack of spending on ME patients
A call has been made for more NHS cash to be spent on people suffering from a mysterious illness which causes chronic tiredness. |
• |
Caring Choice
Information about the South Australian organisation Caring Choice. |
• |
Moving to New Zealand helped Michael Crawford deal with ME
Actor Michael Crawford, the Phantom of the Opera star, has opened up about his move to New Zealand that helped him deal with his chronic fatigue syndrome. |
• |
The name game and CFS: DSM-5 revisions should be openly debated
A discussion of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5). |
• |
Treating pain via immune pathways: Naltrexone and Fibromyalgia
New information is available about extremely low doses of the drug naltrexone, which Stanford researchers have for the past several years been investigating as a Fibromyalgia treatment. |
• |
Weekend House Call: Fibromyalgia
A video from US TV station WDSU New Orleans featuring Medical Editor Dr. Corey Hebert explaining Fibromyalgia. |
• |
Wait six months before treating fatigue, GPs told
GPs should advise patients with chronic fatigue to wait and see if their tiredness resolves itself with six months, recommend UK researchers who looked at the time course of symptoms. |
• |
Biovista awarded research grant on CFS
Biovista announced that it has been awarded a research grant by The CFIDS Association of America to identify non-obvious mechanisms of the disease and potential drug repositioning candidates that will advance objective diagnosis and effective treatment of Chronic Fatigue Syndrome. |
• |
The objective medical findings of the chemically sensitive
An article in response to certain political operatives who claim that the medically proven malady of chemical and irritant sensitivities is not a proven one. |
• |
Rachel on the walk of her life
A profile of Rachel Klyves and her 700km walk from Byron Bay to Sydney for charity. |
• |
Naltrexone may never be approved by the FDA
Although researchers at Stanford University's School of Medicine have conducted two small studies showing that low doses of naltrexone can reduce fibromyalgia symptoms by as much as 50 percent, the FDA has not approved the use of naltrexone to treat fibromyalgia. |
• |
Society seminars for 2012
A list of Society seminars for the year. |
• |
For many with Fibromyalgia, stigma bars the way to treatment
A new survey finds that 59 percent of fibromyalgia patients delayed getting a diagnosis or treatment because of fears that people would think they were complaining or faking symptoms. |
• |
Web-based therapy for chronic fatigue
Treatment programs via the internet are now used in a variety of health conditions. |
• |
Online therapy reaps rewards for teenagers with chronic fatigue
A web-based therapeutic programme for adolescents with chronic fatigue syndrome is at least three times more effective in reducing symptoms of the disorder than regular treatment, one study has found. |
• |
Change for ME Australia
Facebook group Change for ME Australia has created a video entitled "Good Day Bad Day". |
• |
Study provides evidence of milnacipran efficacy for the long-term treatment of Fibromyalgia
A study that evaluated the effect of discontinuing long-term treatment with milnacipran on the symptoms of fibromyalgia found that once the agent was withdrawn, time to loss of therapeutic response was significantly shorter than in patients who continued treatment. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
Whittemore Peterson Institute seek millions in damages from fired researcher
Now that a judge has ruled in favor of the Whittemore Peterson Institute in a civil case against a researcher who took a laptop, notebooks and files after she was fired, the two sides are fighting over damages. |
• |
Researchers test drug, psychotherapy combo for Fibromyalgia
For the first time, researchers will test whether two treatments are better than one for patients with fibromyalgia. |
• |
CFS in the media: a content analysis of Norwegian newspaper articles
Research published in the Journal of the Royal Society of Medicine. |
• |
New survey finds majority of Fibromyalgia patients delay diagnosis & treatment due to common misperceptions
New research finds Americans living with Fibromyalgia suffer from much more than chronic pain, fatigue and depression – they often endure common misperceptions about their condition. |
• |
Confirmation: low-dose naltrexone eases Fibromyalgia pain
A new study, reported at the American Academy of Pain Medicine 28th Annual Meeting, shows that a low dose of the opioid antagonist naltrexone significantly reduces daily pain in patients with fibromyalgia. |
• |
The sensitization model to explain how chronic pain exists without tissue damage
There is now enough evidence available indicating that chronic pain syndromes such as low back pain, whiplash, and fibromyalgia share the same pathogenesis, namely, sensitization of pain modulating systems in the central nervous system. |
| February |
• |
Cheryl Gillan's special adviser Richard Hazlewood's 300-mile bicycle ride for charity
Welsh Secretary Cheryl Gillan's special adviser Richard Hazlewood is going on a 300-mile bicycle ride to raise money for charity after his wife Rachel was diagnosed with ME. |
• |
Coenzyme Q10 in salivary cells correlate with blood cells in Fibromyalgia
A study published in Clinical Biochemistry. |
• |
Substantial cognitive impairment in Fibromyalgia linked to one factor: pain level
An article published in the European Journal of Pain entitled "Cognitive impairment in fibromyalgia syndrome: The impact of cardiovascular regulation, pain, emotional disorders and medication". |
• |
Research examines environmental triggers altering gene function in CFS patients
A University of Toronto Scarborough researcher is examining how environmental triggers might alter gene function in people with Chronic Fatigue Syndrome. The research could lead to better insights into the disease and eventually to new treatments. |
• |
With help from author Laura Hillenbrand, drug repurposing comes to CFS
The CFIDS Association of America says that $2 million in funding — backed by individual gifts including a $250,000 donation from best-selling writer Laura Hillenbrand, who has chronic fatigue syndrome — is going to grants and projects designed to accelerate the development of treatments for CFS. |
• |
Societal and individual burden of illness among Fibromyalgia patients in France
A study published in the medical journal BMC Musculoskeletal Disorders. |
• |
Working memory problems in Fibromyalgia and CFS
Working memory impairment is a common part of the cognitive dysfunction (brain fog or fibro fog) caused by Fibromyalgia and CFS. |
• |
Research Institute Without Walls
The CFIDS Association of America has announced new additions to its comprehensive research initiative to advance objective diagnosis and effective treatment of CFS. |
• |
Test of immune activity in ME/CFS indicates it's a condition associated with overactive Th2 response
An article published in the Journal of Medical Laboratory and Diagnosis entitled "Self-test monitoring of the Th1/Th2 balance in health and disease with special emphasis on chronic fatigue syndrome/myalgic encephalomyelitis". |
• |
Autonomic dysfunction in women with fibromyalgia
An editorial by J Derek Kingsley published in Arthritis Research & Therapy. |
• |
Norwich woman with Fibromyalgia takes on fundraising coastal walk
UK Fibromyalgia sufferer Rebecca Wass plans to walk 100 miles around the length of Norfolk's coastline for charity. |
• |
Ladies sneak peak at 2012 Olympic stadium site
Three UK women got a sneak preview of the 2012 Olympic Park as a thank you for their work in the community. |
• |
Life's A Beach Walk
Life's a Beach Walk is a 700km walk on the NSW Coast from Byron Bay to Sydney that was created by Rachel Klyve to raise awareness of ME/CFS. |
• |
Men with Fibromyalgia: special problems and symptoms
An article about how Fibromyalgia affects men differently to women. |
• |
Radio show podcast: CFS infection and research
An episode of the Health Matters Show that focuses on CFS infection and research. |
• |
Chronic fatigue seen in many previously infected with Q fever in the Netherlands
In a study just released in the European Journal of Public Health, Dutch researchers show that many of those infected with Coxiella burnetti previously, now face chronic fatigue syndrome and other physical symptoms. |
• |
Mitochondrial myopathy presenting as Fibromyalgia: a case report
Research results demonstrating that "adults diagnosed with fibromyalgia may have their symptom complex related to an adult onset mitochondrial myopathy". |
• |
Five locals set sights on climbing Mt. Kilimanjaro
An article about Lisa Moretto and four other people who aim to climb Mount Kilimanjaro for charity. |
• |
Two inspirational Palm Beach County women take on Sunshine State Races despite challenges
Among the hundreds of participants who will be competing in the Sunshine State Races on Feb. 25 is Frani Schmidt, a West Palm Beach woman who has overcome several challenges and calls running a "symbol of life." |
• |
Bowel parasite may lead to Chronic Fatigue Syndrome
A new study out of Norway suggests that the bowel parasite Giardia lamblia lead to an increased rate of chronic fatigue syndrome (ME/CFS). |
• |
Mayo Clinic links obesity to Fibromyalgia
Researchers at the Mayo Clinic say obese people are at greater risk for fibromyalgia and are more likely to suffer from severe symptoms. |
• |
Lyme disease victims ignored
South Australian current affairs television program Today Tonight has a story on Lyme disease. |
• |
Group behind retracted XMRV paper holds on to grant money
The Whittemore Peterson Institute in Reno, Nevada, has managed to keep a 5-year, $1.5-million U.S. government grant in spite of firing the principal researcher named on the grant. |
• |
Emma's success against all odds
An article about 16-year-old UK ME sufferer Emily Manning who hopes to take part in a once-in-a-lifetime opportunity doing charitable research work in Africa later this year. |
• |
Pain negatively affects cognition in Fibromyalgia
Stefan Duschek, PhD, from the University of Munich has told the 6th World Congress of the World Institute of Pain that pain is the primary factor contributing to cognitive impairment in patients with fibromyalgia syndrome, over and above depression, anxiety, fatigue, sleep complaints, and medication use. |
• |
ME sufferers call for help
Thousands of people across Northern Ireland suffer from ME, also known as Chronic Fatigue Syndrome, but they say there is not enough medical help in the region. |
• |
Women with Fibromyalgia walk with an altered muscle synergy
Research results published in the journal Gait & Posture. |
• |
Fallout from fatigue syndrome retraction is wide
An article from The New York Times about the brouhaha surrounding the XMRV false trail. |
• |
Increasing orthostatic stress impairs neurocognitive functioning in CFS
A study published in London's Clinical Science entitled "Increasing orthostatic stress impairs neurocognitive functioning in chronic fatigue syndrome with postural tachycardia syndrome". |
• |
Sodium oxybate therapy provides multidimensional improvement in Fibromyalgia
A study published in the Annals of the Rheumatic Diseases entitled "Sodium oxybate therapy provides multidimensional improvement in fibromyalgia: Results of an international phase 3 trial". |
• |
Oxidative stress in Chronic Fatigue Syndrome
A new study supports the theory that chronic fatigue syndrome (ME/CFS) may be related to oxidative stress, and that oxidative stress may play a key causative role in the illness. |
• |
Concern over cuts to carers' support
A UK mother and daughter have expressed concern over plans by Somerset County Council to cut the number of youth workers that support young carers. |
• |
Trapped in her room for over 1000 days
A profile of South Australian MCS sufferer Amelia Hill. |
• |
EC mom wins suit against Shoprite
A South African woman has successfully sued Shoprite Checkers after a box of frozen vegetables fell on her during a shopping trip, injuring her neck and shoulder, resulting in ailments that include Fibromylgia. |
• |
The case against the Whittemores and the importance to the neuro-immune disease community
Harvey and Annette Whittemore, founders of the Whittemore-Peterson Institute for Neuro-Immune Diseases, have been sued by their former business partners for embezzlement in the amount of more than 40 million dollars. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
National Welfare Rights Network
Australia's National Welfare Rights Network provides free and independent information, advice and representation about Social Security law and its administration. |
• |
Pulse abnormalities at rest and during tilt test could be highly indicative screen for ME/CFS
An article published in Physiological Measurement entitled "Chronic fatigue syndrome and impaired peripheral pulse characteristics on orthostasis - a new potential diagnostic biomarker". |
• |
Society seminar reminder
A reminder that the Society's first seminar for 2012 will be held next tomorrow (Saturday 4 February). |
• |
Student hub for people with ME
UK charity Action for ME has set up a Student Hub section on its website. |
• |
Breaking the Shell: Understanding centralization and myofascial trigger point's effects in Fibromyalgia
An article by Celeste Cooper focusing on her concerns about modifications to the "Preliminary Proposed Diagnostic Criteria for Fibromyalgia." |
| January |
• |
"Governed by the pain": Narratives of Fibromyalgia
Research results published in the journal Disability and Rehabilitation. |
• |
Cortical electrostimulation for Fibromyalgia
A study published this month in the journal Pain Medicine supports earlier findings that noninvasive cortical electrostimulation may be somewhat effective against fibromyalgia symptoms. |
• |
Surveying Siberia on a 70-year-old motorcycle
A London surveyor is celebrating his return to health after battling chronic fatigue by crossing Siberia on a motorbike in temperatures as low as -60C. |
• |
Society seminar
The Society's first seminar for 2012 will be held next Saturday (4 February). |
• |
For many Fibromyalgia patients, pain takes a back seat to other symptoms
An article published in the New Zealand Medical Journal entitled "Women with fibromyalgia syndrome in New Zealand: The symptom experience". |
• |
Ampligen for Chronic Fatigue Syndrome: still a possibility
After being rejected 2 years ago, the drug that many thought would become the first FDA-approved treatment for chronic fatigue syndrome (ME/CFS) apparently isn't off the table. |
• |
CFS and the UK insurance industry
An article by Peter Kemp. |
• |
Mother suffering debilitating condition tells of verbal abuse distress
A profile of UK Fibromyalgia sufferer Gemma Hall. |
• |
Foods that aggravate Fibromyalgia and their substitutes
A video from Fox 4 News Kansas City. |
• |
Portraits of Americans living with Multiple Chemical Sensitivity
The work of MCS sufferer Thilde Jensen, a Danish photographer whose series of photographs chronicle the day-to-day-lives of fellow MCS sufferers. |
• |
Dr. Kevin White's response to Fibromyalgia disbelievers
A video from Dr. Kevin White. |
• |
eReader benefits for Fibromyalgia and Chronic Fatigue Syndrome
About.com's Adrienne Dellwo highlights several benefits of an eReader for people with Fibromyalgia or CFS. |
• |
Toxic Tiredness examined on TV
Benjamin H Natelson, MD believes that the seat of CFS and Fibromyalgia lies in the central nervous system, and has published more than a dozen papers on the subject in the past two years alone. |
• |
Authors link personal experiences with Fibromyalgia in latest issue of magazine
Benjamin H Natelson, MD believes that the seat of CFS and Fibromyalgia lies in the central nervous system, and has published more than a dozen papers on the subject in the past two years alone. |
• |
Do brain problems drive ME/CFS and Fibromyalgia?
Benjamin H Natelson, MD believes that the seat of CFS and Fibromyalgia lies in the central nervous system, and has published more than a dozen papers on the subject in the past two years alone. |
• |
Irish doctor opens new CFS clinic in NYC
Clinic opens after $1 million donation from Doctor Enlander's patients. |
• |
ME/CFS: Into 2012 without cure or care
It's an indecent disease, shrouded in mystery, endless in suffering, in stigma and in despair. |
• |
Study demonstrates glutamate dysregulation in Fibromyalgia
A new study provides further evidence of high levels of the neurotransmitter glutamate in Fibromyalgia and suggests that lowering glutamate levels could help alleviate symptoms. |
• |
CFS or ME: more than just tired
Red Symons talks to psychiatrist Dr Nicole Phillips about Chronic Fatigue Syndrome, including some of the misconceptions surrounding the disease also known as Myalgic Encephalomyelitis. |
• |
Teddington School first year completes charity walk
An 11-year-old UK boy completed a charity walk around Richmond Park to help his neighbour who suffers from ME. |
• |
Writing a book helps woman deal with chronic disease
A profile of Sheila Dembowski who has written a book called Leaning Into the Light which details her struggles with Fibromyalgia. |
• |
Retired church minister from Yate 'used to sleep for 22 hours a day'
A profile of Methodist minister and ME sufferer Mary Yates. |
• |
School-based clinics feasible for ID'ing Chronic Fatigue
School-based clinics can identify children with chronic fatigue syndrome/myalgic encephalomyelitis, and may be useful for diagnosing children with less severe symptoms, according to a study published online in BMJ Open. |
• |
Pageant a platform for Desiree Quinn to spotlight Fibromyalgia
A profile of Desiree Quinn who was recently crowned Mrs. Clark County International and is using her position to raise awareness for Fibromyalgia. |
• |
Advocating for invisAbilities
An article about how we can accommodate people with "invisible" chronic illnesses. |
• |
A tale of two viruses: why AIDS was pinned to HIV, but Chronic Fatigue Remains a mystery
An article about how two diseases are researched. |
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Woman perseveres with artwork
A profile of glass sculptor and ME/CFS sufferer Christa Alford. |
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Does personality relate to Fibromyalgia?
Can your personality affect the likelihood that you'll develop a health condition? Some scientists believe that may be the case with fibromyalgia. |
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Positions vacant
We currently have a number of positions available. |
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Lawton-area boy's sensitivity to chemicals leaves parents pleading for change in roadwork plans
Parents January Slater and Ben Khabra are rabidly green on behalf of their 4-year-old son, Jackson, not because of political leanings but because Jackson's medical condition, Multiple Chemical Sensitivity, requires that level of diligence. |
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South Australian Government Medical Heating and Cooling Concession
The Medical Heating and Cooling Concession is a new energy concession introduced by the South Australian Government on 1 January 2012. |
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Medical marijuana shows promise for pain
A discusson about the pros and cons of medical marijuana. |
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More evidence that CFS and CFS+FM differ in their response to exercise
A study published in Medicine & Science in Sports & Exercise entitled "Responses to Exercise Differ for Chronic Fatigue Syndrome Patients with Fibromyalgia". |
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Queen's Hospital scientist disciplined after calling GP "uber quack"
A senior clinical scientist at Queen's Hospital who made "disparaging, inappropriate and unprofessional" comments about a GP on a public forum was found guilty of professional misconduct. |
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Spain's Ministry of Health presents its Consensus Document on MCS
The Ministry of Health in Spain has submitted its consensus document on Multiple Chemical Sensitivity. |
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Illness clusters: the reason Fibromyalgia & Chronic Fatigue Syndrome "bring friends"
In a review of Fibromyalgia literature, noted researcher Dr. Muhammed Yunus presents evidence for the cluster of illnesses we generally see all having a key feature in common: central sensitization. |
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Former YSU recruit Kaitlin Rohrs battles rare disease head on
A profile of US basketballer and ME/CFS sufferer, Kaitlin Rohrs. |
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"Catalysts" are transforming research
THECatalystFUND is a fund created by the CFIDS Association of America that hopes to speed discovery and transform the way that CFS research is conducted. |
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Happy New Year
All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year. |
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