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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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In the News

2019

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Fibromyalgia news

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Multiple Chemical Sensitivity news

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Multimedia

 

March

Long-Term Follow-Up Of Young People With Chronic Fatigue Syndrome Attending A Pediatric Outpatient Service
Saturday 23 March 2019: A study published in the medical journal Frontiers in Pediatrics.

Petition: Remove "Afflicted" Docuseries From Netflix Now
Saturday 23 March 2019: A petition created by Benjamin HsuBorger.

Microbe Discovery Project Merges With CII Center For Solutions
Friday 22 March 2019: The Microbe Discovery Project is moving forward as part of Columbia University Center for Infection and Immunity Center for Solutions for ME/CFS.

Chronic Illness Manifesto Survey
Friday 22 March 2019: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

The Clinician's Coalition: Another Ray Of Light For ME/CFS
Thursday 21 March 2019: An article by Cort Johnson for Health Rising.

The Establishment Media Has Launched A Vicious 'War' On Chronically Ill People
Wednesday 20 March 2019: The media has upped the ante on a vicious and abusive war on ME/CFS sufferers.

ME Patients And The Researchers That Silence Them
Wednesday 20 March 2019: An article by Laura Elliott about the current controversary surrounding the PACE Trial.

FDA Takes Action Against Marketer Of Unapproved Products Claiming To Treat Addiction, Chronic Pain And Other Serious Conditions
Wednesday 20 March 2019: A press release from the U.S. Food & Drug Administration.

Handbook Of Sleep Disorders In Medical Conditions: Chapter 15 - Chronic Fatigue Syndrome And Fibromyalgia
Wednesday 20 March 2019: Research published in the Handbook of Sleep Disorders in Medical Conditions.

Diagnostic Sensitivity Of 2-Day Cardiopulmonary Exercise Testing In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Wednesday 20 March 2019: Research published in the Journal of Translational Medicine.

South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Wednesday 20 March 2019: Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Groundbreaking Blood Test Detects Fibromyalgia
Tuesday 19 March 2019: Using blood samples and innovative techniques, scientists have detected a "molecular fingerprint" that is unique to Fibromyalgia.

Why Chronic Fatigue Syndrome Is A Feminist Issue
Tuesday 19 March 2019: An article by Caitlin Flynn published in SheKnows.

Good Zing Founder Serena Oppenheim On The Strength Of Sharing Your Story In The Startup World
Tuesday 19 March 2019: An interview with US entrepeneur and ME/CFS/Fibromyalgia sufferer Serena Oppenheim.

We Need To Start Taking Women's Illnesses Seriously
Tuesday 19 March 2019: An Instagram community of women documenting their struggles with chronic pain is flourishing - Selma Blair, Lena Dunham and Kirsty Young are amongst the women speaking up.

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 19 March 2019: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
Tuesday 19 March 2019: The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'.

UK Couple Continue To Raise Funds For A Health Centre In Flintshire
Monday 18 March 2019: A UK husband and wife team are continuing their journey to help people suffering from chronic pain, including Fibromyalgia.

Fibromyalgia Research – Healthy Volunteers Wanted
Monday 18 March 2019: Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Participants Needed For Online Survey
Monday 18 March 2019: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 18 March2019: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

What You Didn't Know About Fatigue
Sunday 17 March 2019: An article published in The Sydney Morning Herald.

Pharmaceutical Interventions In Chronic Fatigue Syndrome: A Literature-Based Commentary
Sunday 17 March 2019: Research published in the medical journal Clinical Therapeutics.

Pain Goes To Pot
Sunday 17 March 2019: An article about the use of medical cannabis in Chicago.

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 17 March 2019: A petition from Jake Bailey on Change.org.

Online Information About Fibromyalgia Is Inconsistent, Incomplete, Misinterpreted, Study Finds
Saturday 16 March 2019: A study has found that most information about Fibromyalgia available on the internet is incomplete and may be difficult to understand for laypersons, especially as it relates to symptoms, causes, associated conditions, and treatments.

Petition: Remove "Afflicted" Docuseries From Netflix Now
Saturday 16 March 2019: A petition created by Benjamin HsuBorger.

Disease Has Nation Ford Coach Out Of Action, Seeking Answers
Friday 15 March 2019: A profile of US ex-high school soccer coach and ME/CFS sufferer Jon Jarrett.

Chronic Illness Manifesto Survey
Friday 15 March 2019: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Chronic Fatigue Activists Are Trying To Silence Us: Researchers
Thursday 14 March 2019: An article about the controversy surrounding Cognitive Behaviour Therapy and Graded Exercise Therapy for the treatment of ME/CFS.

EMERGING Insights: The Australian ME/CFS Symposium Livestreamed
Wednesday 13 March 2019: Health Rising's Cort Johnson reports on the livestream event of the Emerge Conference in Australia.

South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Wednesday 13 March 2019: Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Chris Swales: Master Of Stone
Tuesday 12 March 2019: A profile of UK mason and Fibromyalgia sufferer Chris Swales.

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 12 March 2019: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
Tuesday 12 March 2019: The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'.

Makeup Addiction Founder Djimbi Djevdet Used Makeup To Cope With Chronic Pain & Started A Major Brand In The Process
Monday 11 March 2019: A profile of UK Fibromyalgia sufferer Djimbi Djevdet.

Fibromyalgia Research – Healthy Volunteers Wanted
Monday 11 March 2019: Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Participants Needed For Online Survey
Monday 11 March 2019: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

ME/CFS South Australia Inc Co-Signs International Open Letter
Monday 11 March2019: ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial.

Moderate Alcohol Intake Associated With Less Chronic Pain, Depression
Sunday 10 March 2019: A study from the University of Michigan suggests that moderate alcohol consumption can relieve pain in people with chronic pain or Fibromyalgia.

Dismissing Chronic Illness: A Qualitative Analysis Of Negative Health Care Experiences
Sunday 10 March 2019: A study that analyzed negative patient experiences with health care professionals.

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 10 March 2019: A petition from Jake Bailey on Change.org.

International Women's Day: 20 Inspiring Australian Women
Saturday 9 March 2019: Amongst 20 Australian women of note in a New Idea article is a profile of former ME/CFS sufferer Joh Griggs.

Petition: Remove "Afflicted" Docuseries From Netflix Now
Saturday 9 March 2019: A petition created by Benjamin HsuBorger.

Soursop Leaf Extract Relieves Fibromyalgia Symptoms In Mice, Study Shows
Friday 8 March 2019: Supplementation with an extract of soursop leaves alleviated pain symptoms, depression, and anxiety in a mouse model of Fibromyalgia, researchers report.

UK Motorist's Fibromyalgia 'Prevented Her From Taking Breathalyser Test'
Friday 8 March 2019: A UK woman who crashed into a terraced house causing a gas pipe to burst said she was unable to give a breath sample because she suffers from Fibromyalgia.

13 Things Fibromyalgia Is Not
Friday 8 March 2019: An article about Fibromyalgia published in The Mighty.

Chronic Illness Manifesto Survey
Friday 8 March 2019: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Chronic Fatigue Syndrome Can Be Improved With Cocoa
Thursday 7 March 2019: A study showing cocoa helping curb fatigue typically associated with Multiple Sclerosis may also help ME/CFS sufferers.

Man "Harassing" Ill Mum On Her Doorstep Knocked Out Cold When Her Son Comes Home
Thursday 7 March 2019: A man accused of harassing a woman with Fibromyalgia on her own doorstep has been knocked out with a single punch when her burly son arrived home from football practice.

Theatre Review: Mustard Seed's 'Well' Is Charming, Whimsical And Seriously Informative
Thursday 7 March 2019: A review of the US play 'Well', in which the matriarch of a family has ME/CFS.

Chronic Fatigue Syndrome: 'It Was Like A Switch Had Been Flipped. I Couldn't Stand Up'
Wednesday 6 March 2019: A profile of Irish artist and ME/CFS sufferer Rosa Devine.

South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Wednesday 6 March 2019: Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Anne Curtis Returns To Playing One Of Her 'Core Roles' – The Other Woman
Tuesday 5 March 2019: Actress Anne Curtis will be playing a woman with Fibromyalgia in an upcoming movie.

UK Sisters Cope With Fibromyalgia, Balancing Various Treatments
Tuesday 5 March 2019: A profile of UK Fibromyalgia sufferers Kim Polatas and her sister Jamie Dobson.

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 5 March 2019: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
Tuesday 5 March 2019: The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'.

Fibromyalgia May Affect As Many As One In 25 People In Northern Ireland
Monday 4 March 2019: About 4,500 people in Northern Ireland are receiving a Personal Independence Payment (PIP) for living with Fibromyalgia – but as many as one in 25 people may actually be affected.

Fibromyalgia Research – Healthy Volunteers Wanted
Monday 4 March 2019: Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Participants Needed For Online Survey
Monday 4 March 2019: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

ME/CFS Australia (SA) Inc Co-Signs International Open Letter
Monday 4 March 2019: ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial.

The PACE Trial And Why CFS Patients Don't Get Treatment
Sunday 3 March 2019: A video on YouTube in which US journalist and ME/CFS advocate David Tuller discusses the PACE Trial, a study that claimed that ME/CFS can be cured with therapy and exercise.

Solving The Mystery of Chronic Fatigue Syndrome
Sunday 3 March 2019: A collaborative Jackson Laboratory research center led by Derya Unutmaz, MD, is diving deep into the biology of ME/CFS patients to find a root cause, which may lie in their own immune systems.

PIP Appeals: 'I've Been Treated Like A Liar And A Fake'
Sunday 3 March 2019: A woman from Cardiff says she was made to feel like a "liar and a fake" after going through an eight-month process and a tribunal to get support for her disability.

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 3 March 2019: A petition from Jake Bailey on Change.org.

Increased Risk Of Chronic Fatigue Syndrome In Patients With Inflammatory Bowel Disease: A Population-Based Retrospective Cohort Study
Saturday 2 March 2019: Research has found that Inflammatory Bowel Disease, especially Crohn's disease, is associated with an increased risk of subsequent Chronic Fatigue Syndrome.

Petition: Remove "Afflicted" Docuseries From Netflix Now
Saturday 2 March 2019: A petition created by Benjamin HsuBorger.

Prescribing For Patients With Chronic Fatigue Syndrome
Friday 1 March 2019: An article published in Prescriber: The Journal of Prescribing and Medicines Management.

The State Of Me: Book Review
Friday 1 March 2019: A review of the 2008 novel The State of Me, in which the main character suffers from ME/CFS.

The Unwanted: Homeless In America
Friday 1 March 2019: A profile of Danish photographer and Multiple Chemical Sensitivity suffer Thilde Jensen.

Chronic Illness Manifesto Survey
Friday 1 March 2019: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.
February

Chronic Fatigue Syndrome – A Comic By Rosa Devine
Thursday 28 February 2019: Irish artist Rosa Devine was a 'strong and fit' teen when Chronic Fatigue Syndrome took over her life.

Chronic Fatigue Syndrome: It's Real, And We Can Do Better
Wednesday 27 February 2019: An article by US ME/CFS researcher Dr Elizabeth Unger, MD, PhD.

South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Wednesday 27 February 2019: Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Society Constitution
Wednesday 27 February 2019: The society's constitution has been updated.

Changes In The Transcriptome Of Circulating Immune Cells Of A New Zealand Cohort With ME/CFS
Tuesday 26 February 2019: Research published in ProHealth.

Epidemiology Of Paediatric Chronic Fatigue Syndrome In Australia
Tuesday 26 February 2019: Research published in Archives of Childhood Disease.

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 26 February 2019: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
Tuesday 26 February 2019: The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'.

Fibromyalgia Research – Healthy Volunteers Wanted
Monday 25 February 2019: Healthy women are wanted as volunteers for innovative Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Participants Needed For Online Survey
Monday 25 February 2019: Researchers from University of SA and Flinders University are looking to understand consumer health care needs.

ME/CFS Australia (SA) Inc Co-Signs International Open Letter
Monday 25 February 2019: ME/CFS Australia (SA) has serious concerns about methodological design flaws in the PACE trial.

Fibromyalgia Sufferers Seek State Support For Debilitating Condition
Sunday 24 February 2019: A profile of Irish Fibromyalgia sufferer Adrienne Dempsey.

Petition: Fix The Issues With Accessing The Disability Support Pension
Sunday 24 February 2019: A petition from Jake Bailey on Change.org.

Homeless: How AMMES Is Keeping People With ME In Their Homes
Saturday 23 February 2019: An article by Erica Verrillo, President of the American ME and CFS Society (AMMES).

Petition: Remove "Afflicted" Docuseries From Netflix Now
Saturday 23 February 2019: A petition created by Benjamin HsuBorger.

UK Parliamentary Debate: Kids Being Taken Into Care By Medics Who Refuse To Believe ME Is Real
Friday 22 February 2019: Children with the devastating illness ME face the threat of being taken into care because medics refuse to accept their disease is real, the UK Parliament was told.

Call For Fibromyalgia To Be Recognised As Long-Term Disability In Ireland
Friday 22 February 2019: Campaigners have called on the Irish Government to recognise Fibromyalgia as a long-term disability.

Meet The Scientists: Dr Christopher Armstrong
Friday 22 February 2019: A profile of Australian ME/CFS researcher Dr Chris Armstrong.

Chronic Illness Manifesto Survey
Friday 22 February 2019: The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness.

Reminder: Two Weeks Left To Register For Advocacy Day On Capitol Hill!
Thursday 21 February 2019: An email from the Solve ME/CFS Initiative.

My Label And Me: I'm Not Tired And Lazy, I Have ME
Thursday 21 February 2019: An article by UK ME/CFS sufferer James Wilson.

Is Chronic Fatigue Syndrome Real?
Thursday 21 February 2019: A letter to the editor in Hawaiian newspaper the Star-Advertiser.

The Bold And The Beautiful Star Schae Harrison's Devastating Health Crisis
Wednesday 20 February 2019: A GoFundMe campaign has been established to give assistance to actress Schae Harrison who has been formally diagnosed with ME/CFS and Fibromyalgia.

South Australian Fibromyalgia Research – Healthy Volunteers Wanted
Wednesday 20 February 2019: Healthy South Australian volunteers are asked to participate in Adelaide research investigating MRI markers of brain inflammation in Fibromyalgia.

Society Constitution
Wednesday 20 February 2019: The society's constitution has been updated.

These People Face Excruciating Pain Daily, But Medicinal Cannabis Makes Life Bearable
Tuesday 19 February 2019: An article about how medicinal cannabis is helping Australian chronic pain sufferers.

Metabolomics Study Suggests Chronic Fatigue Syndrome May Be Oxidative Stress/Low Oxygen Disease
Tuesday 19 February 2019: An article by US ME/CFS sufferer and advocate Cort Johnson.

Study: Impact Of Fatigue In CFS – Call For Research Participants
Tuesday 19 February 2019: The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome.

Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
Tuesday 19 February 2019: The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'.

NHMRC ME/CFS Advisory Committee Report To The CEO – Making Submissions
Monday 18 February 2019: ME/CFS SA has pulled together some information to assist with your submission process, including what you might say and how to submit, for responding to the