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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Archives

2005
2004
2003
2002
2001
2000
1999
Undated

2005

Trans-NIH Working Group on CFS (December 30, 2005)
Dr Peter Del Fante has brought an informative new web page to our attention: the Trans-NIH Working Group on Chronic Fatigue Syndrome, a web page sponsored and maintained by The Office of Research on Women’s Health.

Calendar 2006 (December 22, 2005)
More from Germany! Twice in one week we’ve had a link to Germany to put your way. We ‘sent’ Germany our Guidelines and they’ve now sent us their 2006 calendar.

Jetzt sprechen wir Deutsches! (December 20, 2005)
Now we speak German! We’ve just had news from Germany that our South Australian Guidelines on ME/CFS for general practitioners have been translated into German.

Minister for Health’s lukewarm response to MCS Inquiry (December 15, 2005)
The State Minister for Health has now responded, as he is officially required to do, to the recommendations on improving the management of issues relating to Multiple Chemical Sensitivity. This response refuses to give priority to some of the modest proposals made by the parliamentary committee.

RemedyFind (December 2, 2005)
RemedyFind is a website that describes itself as “an independent, unbiased site where you can rate the effectiveness of treatments for specific health problems.”

Best of Landline: Q fever (November 30, 2005)
The November 27 episode of the ABCTV program, Best of Landline, featured a segment on Q fever. It was originally shown on Landline on August 7, 2005.

Medical article: CFS and exercise (November 29, 2005)
Christine Hunter of the Alison Hunter Memorial Foundation has just drawn our attention to an article at Dynamic Medicine entitled “Time course of exercise induced alterations in daily activity in chronic fatigue syndrome”.

Medical article: CFS and diminished perforin (November 28, 2005)
The December 2005 issue of Clinical and Experimental Immunology contains an article entitled “Chronic fatigue syndrome is associated with diminished intracellular perforin”.

New website – John Graham (November 21, 2005)
Members may be interested to know that John Graham (formerly Dr John Graham) MBBS, FRACP, Epistemologist, Physician and Therapist, has a new website.

Pharmaceutical Benefits Scheme – more transparency? (November 17, 2005)
The latest issue of the Consumers Health Forum of Australia newsletter includes a little snippet (p4 – “The PBAC becomes more transparent”).

Wollongong Support Group newsletter (November 14, 2005)
The Wollongong ME/CFS/FM Support Group has kindly supplied us with the November 2005 issue of their newsletter.

Annual General Meeting (November 8, 2005)
The Society’s AGM is coming up at 1pm on Saturday November 12 at DIRC, 95 Gilles St, Adelaide.

Opinion: Prayer and chronic fatigue (October 26, 2005)
Naomi Flanagan has written an article for Australian Catholics entitled, “A Daily Exercise in Faith,” about living with a chronic illness.

SACOSS 2005 Annual General Meeting (October 21, 2005)
The SACOSS 2005 Annual General Meeting will be held on Tuesday October 25, 2005 at the Pilgrim Centre Hall, 12 Flinders Street, Adelaide.

Multiple Chemical Sensitivity: Public meeting (October 12, 2005)
A public meeting will be held on Saturday October 22, 2005 at the Ellangowan Centre, 80 Payneham Road, Stepney.

Electronic Health Records Information Session (October 8, 2005)
The Consumers’ Health Forum of Australia (CHF) and the Health Consumers Alliance SA would like to invite you to a free information session on Thursday October 13, 2005 on the current situation and future directions for electronic health records.

Second Opinion: Learning Problems and Chronic Fatigue (October 7, 2005)
“Learning Problems and Chronic Fatigue” will be the topic featured on the next episode of ABC TV’s alternative health program, Second Opinion.

Second Opinion factsheets (October 3, 2005)
The ABC TV’s alternative health program, Second Opinion, has two factsheets related to Chronic Fatigue Syndrome available on its website.

Acupuncture effective for fibromyalgia (September 12, 2005)
HealthDay reports that people with fibromyalgia have found short-term benefits with acupuncture.

Nevada Center for CFS and Cancer (September 12, 2005)
When Prof Kenny De Meirleir was in Adelaide, he was delighted to hear that the American state of Nevada had just approved the establishment of a major CFS clinic. He will be involved with it.

MCS public health rally (September 12, 2005)
Saturday September 17 is National Chemical Injury and Sensitivity Day. A public health protest rally recognising Multiple Chemical Sensitivity will be held at midday outside the office of the South Australian Department of Health at 11 Hindmarsh Square, Adelaide.

National Inquiry on Employment and Disability (September 1, 2005)
The Human Rights and Equal Opportunity Commission has released an Interim Report of the National Inquiry into Employment and Disability titled Workability: People with Disability in the Open Workplace.

Closer Than You Think information now online (August 31, 2005)
SACOSS is South Australia’s non-government peak representative body for community services organizations and on March 18, 2005, launched a broad-based anti-poverty campaign, Closer Than You Think. The campaign will raise awareness and change perceptions of poverty and hardship in South Australia.

Keeping in touch with the politics of health (August 26, 2005)
ME/CFS Australia (SA) Inc is a member of the Consumers’ Health Forum of Australia. As its name implies it’s a national body whose task is to represent consumers – that’s us. You can access its site via our membership.

Physical and Neurological Conditions Resource Manual (August 24, 2005)
The Physical & Neurological Council SA Inc has made its Physical and Neurological Conditions Resource Manual available.

Free public forum (August 23, 2005)
Residents from all areas are invited to a Free Public Forum on natural alternatives to toxic chemicals.

Walk a mile in my shoes (August 17, 2005)
In response to the overwhelming support of the nation after the airing of “The Hidden Army” on ABC’s Four Corners programme, caring families invite all caring Australians to “walk a mile in my shoes” on Tuesday September 13, 2005 at 10am on the lawns of Parliament House, Canberra.

Calling young people with CFS (August 10, 2005)
Our practice is to encourage members to support researchers conducting projects related to ME/CFS. Here’s another such request. It’s for young people with CFS, and it’s from someone who suffers from ME/CFS herself.

CFS recovery stories wanted for new book (August 5, 2005)
Have you recovered from CFS? If so, would you write your story to give hope to those who are still suffering? Heartfelt or factual, long or short, just your own story in your own words, to go into a book of recovery stories for people with CFS.

MJA advice on graded exercise (August 1, 2005)
The Medical Journal of Australia has published a new article on that controversial issue, graded exercise. We asked Dr Peter Del Fante to comment on it.

Chronic fatigue linked to gene differences (July 27, 2005)
Dr Peter Del Fante has drawn our attention to an article published recently in New Scientist linking suspect genes in white cells to CFS.

Forum report (July 14, 2005)
A report on the forum held in Adelaide which featured Professor Kenny De Meirleir will be presented on Saturday July 30.

National Trust birthday (July 11, 2005)
The National Trust of South Australia celebrated its 50th birthday at Ayers House on July 1. It turned out to have several links with ME/CFS.

MCS report – Democrats call for action (July 6, 2005)
Today’s release of the Social Development Committee report into Multiple Chemical Sensitivity must be followed up with rapid action by the state government says Sandra Kanck, whose terms of reference instigated the inquiry.

MCS report now available (July 6, 2005)
The long-awaited report of the Social Development Commitee on Multiple Chemical Sensitivity was tabled in State Parliament on July 5.

Kenny De Meirleir forum follow-up meeting (June 30, 2005)
Many members and lots of other people interested in CFS attended the June 2 forum by Prof Kenny De Meirleir.

CFS researchers conference report (June 26, 2005)
John Duley, a specialist in purine and pyrimidine metabolic diseases at Mater Hospital, Brisbane, has offered his perspective on a talk given by Professor Kenny De Meirleir at the two-day CFS workshop in Adelaide on June 3-4, 2005.

Clinical picture of CFS (June 23, 2005)
The Centers for Disease Control and Prevention has a Web page containing recently published reviews and abstracts of articles that present a clinical picture of CFS.

Call for changes to DSP policies (June 21, 2005)
Disability activist Ken Davis is coordinating a campaign to force the Federal Government to back down on the most punitive aspects of new DSP changes and he invites you to join this campaign.

Important public meeting (June 17, 2005)
A public meeting and workshop entitled “Vitamins and Minerals in the Firing Line” will be given by Eve Hillary, the internationally acclaimed author of Children of a Toxic Harvest and Health Betrayal: staying away from the sickness industry.

Fibromyalgia SA seminar (May 24, 2005)
Fibromyalgia SA will be presenting a seminar entitled “Conventional and Complementary Pathways to Living Life Better with Fibromyalgia” on July 3.

Radio interviews available for download (May 23, 2005)
Peter Mitchell, Honorary Secretary, has set up a Management Committee Web page containing recent radio interviews that are available for download.

DSP: Federal Budget announcement (May 11, 2005)
The Society views with concern the changes to the DSP announced in the Federal Budget.

Awareness Seminar 2005: our biggest event for quite a while (May 10, 2005)
We have been offered the chance to have one of the world’s most renowned CFS researchers speak to us on June 2.

Leigh Hatcher book promotional tour (May 6, 2005)
Journalist Leigh Hatcher, recently recovered from Chronic Fatigue Syndrome, is touring the country promoting his new book, I’m Not Crazy, I’m Just A little Unwell.

Regulation of complementary treatments (May 3, 2005)
bmj.com has recently published Fatigue and somatic symptoms, the final article in a 12-part series entitled ABC of adolescence.

Adolescents and CFS (May 1, 2005)
bmj.com has recently published Fatigue and somatic symptoms, the final article in a 12-part series entitled ABC of adolescence.

Reply from 891 ABC Adelaide’s Long Lunch (April 30, 2005)
Kate Bailey, producer of 891 ABC Adelaide’s Afternoon program, replied promptly to Peter’s letter (see below).

Letter to 891 ABC Adelaide’s Long Lunch (April 28, 2005)
On Tuesday April 26, 891 ABC Adelaide ran a session of interest to Society members during the Long Lunch program with Carole Whitelock.

Fibromyalgia SA seminars (April 26, 2005)
Our friends at Fibromyalgia SA are presenting two seminars.

Second Opinion generates passionates responses (April 23, 2005)
The ABCTV program, Second Opinion, which featured Chronic Fatigue Syndrome on its April 19 episode, has generated passionate responses from viewers.

Trends in CFS research (April 20, 2005)
CFS Phoenix has an article on trends in CFS research.

TV program to feature CFS (April 12, 2005)
The ABC TV program, Second Opinion, will feature a segment on Chronic Fatigue Syndrome on Tuesday April 19 at 6:30pm.

New link – Human Services Finder (March 31, 2005)
The Human Services Finder is the place to access information about health, housing, family and community services from the private, public and community sectors in South Australia.

Tourism and disability research project (March 22, 2005)
Tegan Muir, a researcher at the Curtin University of Technology, has begun conducting research on tourism and disability, gathering information that will hopefully benefit people with disabilities.

A patient’s journey with myalgic encephalomyelitis (March 19, 2005)
bmj.com has published a paper entitled A patient’s journey with myalgic encephalomyelitis, by Bie Nio Ong (professor), Daphne Evans (patient), and Andrew Bartlam (director).

A research study involving people with CFS (March 16, 2005)
Kirsty Prior is a PhD student in the School of Medicine at Flinders University. She is currently undertaking research that focuses on the variety of ways in which people generally think about, and behave in response to, illness situations.

Exercise and CFS (February 15, 2005)
Here’s an interesting article on US research findings on ways to exercise when you’ve got CFS.

Treament effectiveness survey (February 2, 2005)
This survey examines the effectiveness (or lack thereof) of a wide variety of treatments, both traditional and alternative, for FM, CFS, and ME.

EPA pesticides review (January 10, 2005)
On behalf of the Society, Secretary Peter Mitchell recently made a submission to the EPA Consultation on Code of Practice – Pesticide Use.

CBT – the arguments rage (January 1, 2005)
Dr Peter Del Fante has just brought this latest paper on CFS and cognitive behaviour therapy to our attention.

2004

Latest research at Adelaide University (December 1, 2004)
Have a look at this work. It’s being conducted just down the road from us!

Gone in a puff (November 30, 2004)
Gone in a puff is an article by Rod Lewis, editor of Encore magazine, about the need for theatre companies to be thoughtful about people with allergies to cigarette smoke, fragrances, and chemicals.

Invitation to comment on EPA draft Code of Practice (November 25, 2004)
An invitation to comment on the EPA draft Code of practice for environmentally responsible pesticide use.

Big news from the AACFS conference (November 23, 2004)
The American Association for Chronic Fatigue Syndrome met in Madison, Wisconsin in early October 2004. Here’s an excellent report of the conference by Dr Rosamund Valings.

Westfield Marion – Christmas Wishes (October 27, 2004)
Westfield Marion’s Christmas Wishes campaign is a reward program where customers bring their receipts to the Wishes Service Area and receive one wish for every $10 spent. These wishes are then redeemed for a number of rewards from the reward pool ranging from Jet skis to CDs and DVDs.

MCS inquiry submission (draft version) (August 23, 2004)
The Society has prepared a submission to go to the parliamentary inquiry into multiple chemical sensitivities.

MCS parliamentary inquiry (July 3, 2004)
Multiple Chemical Sensitivity is a big issue for many of us. With a committee in South Australian, state parliament investigating it at present. This is the time to take action for change.

Awareness Day seminar downloads (June 23, 2004)
Two presentations from the Awareness Day seminar held on May 12, 2004 are available for download.

Cost of CFS to US economy is substantial (June 21, 2004)
A recent news item from the USA announced the findings of a major study into the costs of CFS to society.

Australian Democrats support our cause (June 17, 2004)
Members will be interested to hear that the Australian Democrat Senator Lyn Allison has once again promoted awareness of ME/CFS within the Federal Parliament.

Privacy and healthcare research (February 6, 2004)
The National Health and Medical Research Council has commissioned research with health consumers about how privacy regulations influence medical research and healthcare.

New WEA course (February 4, 2004)
Chronic Fatigue Syndrome is a condition which causes dislocation for sufferers and carers alike. A new WEA course, “Managing Chronic Fatigue Syndrome,” will demystify the condition and identify common concerns and problems and offer ways of dealing with them.

2003

New ME/CFS questionnaire (November 20, 2003)
An important new ME/CFS symptom questionnaire has been developed by Ricky Buchanan (right), author of the very well known “Letter To Normals” which has been published in ME/CFS newsletters and books all over the world. Ricky herself has had severe CFS for over a decade.

Inquiry into Multiple Chemical Sensitivity (September 11, 2003)
On July 9, 2003 South Australia’s Upper House, the Legislative Council, voted unanimously to support an Australian Democrat’s motion requesting the Social Development Committee to inquire into and report on multiple chemical sensitivity.

Leading the Way (May 10, 2003)
A report on a seminar that showcased the excellent South Australian research being done on Chronic Fatigue Syndrome and Fibromyalgia.

Ciguatera and ME/CFS: neurotoxin discovered in Chronic Fatigue Syndrome (February 27, 2003)
National CFIDS Foundation press release.

Canada leads the world with a medical milestone: clinical definition for ME/CFS (February 27, 2003)
The clinical definition is also available on the National ME/FM Action Network.

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2002

Commotion on the Murray (November 1, 2002)
On November 1, 2002, two young Melbourne men completed a descent of the Murray River, raising awareness for Chronic Fatigue Syndrome.

Awareness meeting a great success (May 14, 2002)

Sydney Morning Herald: Sick and tired patients in uproar [external link] (April 29, 2002)

ME/CFS Guidelines: Failure of process by the RACP (April 19, 2002)

Donations (April 2002)
ME/CFS Australia (SA) Inc wishes to thank the following companies for their donations to the Society.

ME/CFS Guidelines in the News (March/April 2002)
The National ME/CFS Guidelines are due to be published in The Medical Journal of Australia (eMJA) on Sunday May 5 despite attempts by consumer groups to have its publication delayed.

EnableNet (March 2002)
Frustrated at not being able to find the disability information that you need? Try EnableNet, a new Web site provided by the Disability Information and Resource Centre.

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2001

Third International ME/CFS Conference (December 2001)
This article appeared on the Alison Hunter Memorial Foundation Web site.

Public Meeting (September 29, 2001)

Public Protest (September 17, 2001)

Public Medical Seminar (August 25, 2001)

Society Get-together (July 21, 2001)

Marathon Row (June 4, 2001)

Public Medical Seminar (May 12, 2001)

Wallaroo Report (March 16, 2001)

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2000

Senate Committee reports on toxic jet cabin fumes [external link] (October 2000)

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1999

Billboard scandal – complaint upheld! (November 1, 1999)

Brussels conference report (September 9, 1999)

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Undated

Mannatech ‘guru’ investigated

Mycoplasma infection and antibiotic treatment

New Research Project

Somatisation disorder – is it all in our heads?

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