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Warp Speed Help For COVID Long Haulers And ME/CFS
Sunday 2 August 2020
Warp Speed Help for COVID Long Haulers and ME/CFS
Conventional wisdom held that if stricken with COVID-19, and it did not kill you, you would get sick, get better in a few weeks and move on. Conventional wisdom was wrong.
The news is teeming with stories of people who got COVID-19, cleared the virus, but are not recovering. Perhaps they did not even step foot in a hospital, yet they have remained sick for months.
These COVID Long Haulers, or LongCovid patients, can have profound fatigue, weakness, bedridden stints, a racing heart, chest pain, breath and cognitive difficulties, fever, GI and sleep problems and more. Many report minimal activity making them worse. One day they improve, the next new scary symptoms emerge, or previously resolved ones resurface.
Who could have predicted this? Who would have known the coronavirus might bring a surge of delayed recoveries or non-recoveries?
Unfortunately, I knew.
So did the up to 2.5 million Americans who experience symptoms similar to LongCovid, but for years. We have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a neurological and immunological disease. Eighty percent of cases start with a viral or bacterial infection. Doctors diagnose ME/CFS after symptoms persist for six months.
I got mononucleosis from the Epstein-Barr Virus in college; it knocked me flat. Since ME/CFS has no FDA-approved treatments and no cure, decades later I am still often homebound or bedridden, as are 25 percent of ME/CFS patients.
Others also knew a post-COVID illness was coming: Leaders at the National Institutes of Health, including Anthony Fauci.
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