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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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IN THE DARK I've Spent A year In Complete Darkness Because Of ME And Can Only Muster The Strength To Speak For Half An Hour A Day

Tuesday 28 May 2019

 

From UK newspaper The Sun:

 

Natalie Price
Natalie Price, 28, has spent a whole year
in darkness suffering from ME.
 

IN THE DARK I’ve spent a year in complete darkness because of ME and can only muster the strength to speak for half an hour a day

Natalie Price, 28, from Cardiff, has been virtually bed bound for 12 months

By Josie Griffiths
27 May 2019
© News Group Newspapers Limited in England.

A WOMAN has spent nearly a year in complete darkness due to a disorder that has left her extremely sensitive to light and sound - and only able to hold down a conversation for half an hour each day.

Natalie Price, 28, from Cardiff, Wales, has been virtually bed-bound and is no longer able to read a book, cook or watch TV.

Fiancé Jonathan Vaughan, 30, a council worker, who is now Natalie's full-time carer said: "The hardest part of it all is that that I can only spend around 30 minutes with her every day.

"She can only see friends for about 20 minutes once a month.

"They will come up to her darkened bedroom and speak to her but very often she can't reply very much.

"Just going to the toilet is like running half a marathon for Natalie.

"I’ve had to stand by and watch the girl I love going from a very active, determined person to someone who can't even eat a bowl of soup because it requires too much energy in her arms."

 

Full article…

 


 

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