ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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IN THE DARK I've Spent A year In Complete Darkness Because Of ME And Can Only Muster The Strength To Speak For Half An Hour A DayTuesday 28 May 2019
IN THE DARK I’ve spent a year in complete darkness because of ME and can only muster the strength to speak for half an hour a day Natalie Price, 28, from Cardiff, has been virtually bed bound for 12 months A WOMAN has spent nearly a year in complete darkness due to a disorder that has left her extremely sensitive to light and sound - and only able to hold down a conversation for half an hour each day. Natalie Price, 28, from Cardiff, Wales, has been virtually bed-bound and is no longer able to read a book, cook or watch TV. Fiancé Jonathan Vaughan, 30, a council worker, who is now Natalie's full-time carer said: "The hardest part of it all is that that I can only spend around 30 minutes with her every day. "She can only see friends for about 20 minutes once a month. "They will come up to her darkened bedroom and speak to her but very often she can't reply very much. "Just going to the toilet is like running half a marathon for Natalie. "I’ve had to stand by and watch the girl I love going from a very active, determined person to someone who can't even eat a bowl of soup because it requires too much energy in her arms."
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)