ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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CanaryPod: Topple Uncaged Meets… The Millions Missing: All Six EpisodesWednesday 15 May 2019
CanaryPod: Topple Uncaged meets… the Millions Missing: all six episodes THIS PODCAST CONTAINS LANGUAGE AND CONTENT SOME PEOPLE MAY FIND OFFENSIVE. THE VIEWS EXPRESSED IN THIS EPISODE ARE THE OPINIONS OF THE HOST AND GUESTS. Welcome to a special series of episodes of #ToppleUncaged! Every week, The Canary will be bringing you a new podcast on the media landscape; hosted by me, Steve Topple. But last week was different. Because it was both Millions Missing and ME Awareness week. So The Canary and I brought you content across seven days. Millions Missing Myalgic Encephalomyelitis, commonly referred to as ME, is a chronic systemic neuroimmune disease. It affects an estimated 17 million people at least worldwide and around 250,000 people in the UK. It has been fraught with controversy. For decades – and often still to this day – the medical profession has not properly recognised it. People living with ME have been disbelieved, stigmatised, given incorrect treatment, or told it’s ‘all in their heads’. But campaign group ME Action Network (#MillionsMissing) and charity ME Association (#MEAwarenessWeek) aim to change this. Six podcasts. One important message. So to support both groups and raise awareness of ME, I published six podcasts with six different guests. Below, you can find each of the episodes with just the interviews only. Because many people living with ME have both aural sensitivity and cognitive impairment, it’s often important to them to have just talking without any external sources, like music. So here are my stripped back podcasts. Episode One Episode one was with campaigner and mother of a child with ME, Tina Rodwell. We discussed how the disease affects children, how government departments deal (or don’t) with them and their families, and the countless barriers and prejudice they face:
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