ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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'HARD TO COPE' Mum-Of-Two With Chronic Fatigue Says Condition Is Triggered By Her NOISY KidsTuesday 7 May 2019
'HARD TO COPE' Mum-of-two with chronic fatigue says condition is triggered by her NOISY kids Katy Beardsworth has ME and has to lie down in a dark room when her kids start being loud The deeply misunderstood neurological condition affects more than 250,000 people in the UK and for which there is no cure. One in four are so severely affected that they are rendered housebound or bedbound - with some even reliant on tube feeding. Sufferers are often confined to their beds, unable to walk, and need help even to shower - an action that could then lay them low for hours, or even days. Mum-of-two Katy, from Milton Keynes, Bucks, became ill after the birth of her second child, Eliza, two. Highly sensitive Her neurological illness is made worse by exertion - including sensitivity to sound and light. It means that her toddlers’ touch and voice can be too painful to tolerate. Katy, also mum to Xander, five, and wife to Garry, 36, said: “My life has changed massively. “Before I got sick I was extremely active. I used to run, swim, lift weights, go to yoga and pilates classes. "Weekends were spent going on walks and cycles with the kids and I was very ambitious at work. “Fast forward two years and things couldn’t be much more different. “Being a parent is the area of my life which causes me the most guilt and is the hardest to feel like I am managing adequately. “I have two young children, who are both wonderful and exhausting.”
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
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